At Sun, 15 Sep 2002, Denise wrote:
>
>At Sun, 15 Sep 2002, Msvirgo9459@aol.com wrote:
>>
>>I just want to let you know that I do read emails not every day buT I do and
>>when there is an annonymous name I will not respond cause I like to know who
>>I am talking to. And also we are not medical professionals only people who
>>suffer like you do..If you are not satisfied with the info as you come on to
>>the site and reading the stories on the quilt you may find yourself in a
>>termoil of uneventful surgeries because there aren't many docs who can offer
>>you any more than what you have here.,There is no real answer to this problem
>>it isn't like magic. We all still have been through many tests and surgeries
>>to find ourselves right back in this vicious pain. This is not a know it all
>>site. We suffer in pain and have to deal with it until maybe someday someone
>>will find the cure but for now there isn't any in the US atleast.If you think
>>you need some confirmation in what we tell you contact Dr WIseman and see
>>what answers you get from him and I also want to tell youthat it may take
>>some time for him to answer you as well because he is busy trying to conquer
>>some help for us too.
>>Lillian
>
>Let me assure you,, I didn't come to this site thinking to find the cure
>all !!! Believe me,, I already know the odds and that there is no real
>cure as of yet!!! But what I didn't expect to find was people that want
>to place judgements on others for wanting to help or aid in the help to
>finding a cure for this!! I don't want to "just sit by and wait",,, if
>there is some way or some person or Doctor out there that needs the
>actual real thing to work with,,, I am willing to supply them with
>that!! I don't think that entitles me to being talked to or sent an
>e-mail that is basically telling me I'm stupid for wanting to
>try????????? And if I could afford to go to Germany or Austraila,,,
>don't you think I would of been there by now???? Maybe more like 3 years
>ago when this started?? Since I also know they do the brush-on in Europe
>and have been for 5 years now with a very high success rate?????? Helo
>out there,,,,, I can't afford to do it,,, so if there is one of these
>Doctors out there that needs the patient,,,, "Hey Here I am" that's all
>I'm saying here!!!!! That's all I was asking for,,, just was asking if
>anyone knew of such a place or a Doctor!!! What I didn't ask for ,,, was
>to be condemed for wanting to at least try!!!
>Thank you
>P.S. My first posting was not done as annonymous it was posted Sept 12.
>titled "Information On Research Testing/ Volunteering".And my name is
>right next to it!
>Thank you again,
>Denise