Michelle,
If you can afford Drs. R&R, you should be able to get
yourself to Germany ASAP! E-mail Helen Dynda, she has
loads of info. on this. Don't give up! We are hear to
support you. If I had the resources I would go to
Germany, now.
Take Care,
Rita
--- Shawna French <frenchysha@yahoo.com> wrote:
> > Dear Michelle, I am so sorry to hear you have gone > through soooo much, I too am on alot of meds and to > lay in bed seems the best, non movement, when I went > Louisiana my specialist did the best also and I was > actually pain free for 8 months then wham back in > bed I went, know this we do care about you and I > will pray for pain free days for you! Any time you > want to e-mail me feel free I am here to listen and > remember I deeply care about your pain!! Shawna F. > Michelle wrote: Hello all, > I posted once before, but I must have picked a bad > time - no one > responded. At first I was hurt, but after reading > more posts I have > come to appreciate how generous you all are in > sharing your caring, > knowledge and your time even though you all are in > pain and that you > can't possibly answer every post! Before I begin my > rambling self > pitying story, I offer my sincere thanks for this > forum & all who > contribute. > I too suffer from the relentless pain that so many > of you speak of. > I've had numerous pelvic/abdominal surgeries, tests, > physical therapy, > biofeedback, acupuncture, radiofrequency, nerve > blocks - you name it! > I take a ton of meds - DAILY dose = 18 Neurontin, 3 > Gabitril, 3 > Oxycontin, OxyIR as needed for breakthrough & 2 > Wellbutrin - they help > control the pain, but don't eliminate it. > I am also homebound with very limited activity. > I feel best when I lay flat & still, take all my > meds & either eat > nothing or very little. > To make a long story short - I finally found you all > and through this > site and links found on this board, I have educated > myself about ARD and > RSD (CRPS). > Throughout this whole nightmare I've remained > hopeful that if I couldn't > be completely pain free, I could at least find some > way to control the > pain enough to be reasonably "normal" again and > maybe even go back to > work (and play). > My last surgery was with Drs Reich & Redan in > Scranton, PA. These are > fantastic doctors - particularly Dr. Reich. It took > them just a few > hours of surgery to perform a miracle! > For the first time since this all began - I was > TOTALLY pain free!!!!! > Unfortunately it only lasted six days and then the > pain came back in > full force. > So here I am - still laying on the sofa taking > buckets of pills. I've > been to the best and they did their best - I just > wasn't one of the > lucky ones. There's nothing left to hope or strive > for and I can feel > depression, anger and despair creeping in and I > don't know how to stop > it. > What do I do now? > > -- > Michelle > > http://www.adhesions.org/forums/listcmds.htm >