Re: Katherine wrote on June 22, 2003
From: Karen Steward (kann@charter.net)
Tue Jun 24 00:01:09 2003
Maria,
I know your message is for Katherine......but I am sooooooo
bothered about you going for more surgery in the States.
My daughter and I flew to California last September to a very
popular "world renowned" surgeon.........she had surgery.........
her "recovery" time was 12 weeks in BED after we returned
home...........she got so much worse after that surgery!!!
Please think long and hard before subjecting your body to
surgery in the US.......so very, very few can report good
results, as the US surgeons use CO2 (causes adhesions to form
in areas they are not even working on!!!)...........there is no
SprayGel available to apply once the adhesions are taken down.
You state that you are a complicated case....and you have had one
doctor turn you down............a complicated case needs a
surgeon that is skilled in handling complicated cases!!!
Dr. Kruschinski in Germany has handled many complicated cases!
Please e mail him before you submit yourself to more surgery.......
he will be glad to answer you.............
I am so sorry to report that many a doctor will wheel you right into the
operating room in the US because they make money doing so.
It is sad but true that they KNOW the risk of reformation of adhesions
is HIGH...........but most will never being that fact up in discussion.
You must realize, along with everyone reading, surgery is their
business, regardless of your outcome....................
As you well know, adhesion pain is a HUGE problem...........and
currently the majority of success stories are coming out of Germany.
Dr. Kruschinski does not use CO2.........and he is VERY talented in
bringing the patient to an adhesion free state!
I can give you a list of people to email and ask about their surgeries
with him..........I know I sound like a broken record, but I made a promise
in prayer that I must keep.........if my daughter EVER became well after 14
miserable years, I will share her story so others can be free.............
a lot of people that have regained their lives do not post very often...as
they are out enjoying life again (as my daughter is) and they are making
up for lost time...........................................so here I am,
one more time..............sharing with YOU..........
Sincerely,
Karen
-------Original Message-------
From: adhesions@adhesions.org
Date: Monday, June 23, 2003 10:37:07 PM
To: Multiple recipients of list ADHESIONS
Subject: Re: Katherine wrote on June 22, 2003
This message is for Katherine wrote June 22, 2003. My name is Maria and
like you I am suffering from chronic abdominal pains for the last 3
years now. I have been seen and done all kind of procedures on me and
also got all kinds of opinions from different surgeons. And all of them
told me "adhesions do not cause pains", and they are all wrong! They
just don't have no idea nor understand how this is causing our daily
lives. I have been suffering from depression and anxiety because of the
pains I am having. I am on all kind of high narcotic pain medications.
I even went to pain management and they did something to kill the pain
by putting needle on my back all the way to my abdomen, and boy I was in
total pain! They had to do it again the second time which the pain got
worst. I've been admitted to the hospital so many times cause of the
pains and my stomach distented looks like I'm 6-7 months pregnant. But
all they did is just keep shooting me with pain killers, you name it I
already had them all. My husband co-worker referred us to one of the
best doctor here in Las Vegas, Nevada. And he is a great doctor. He
believes what I am going through and helping me find a surgeon who will
do "Adhesiolysis." I almost had a surgery here but the surgeon
backed-out. He told me that it will be very complicated to do an open
surgery, since I had 8 different surgeries in the past including
hysterectomy due to severe adhesions. So, I did a research myself on
the net. I found one in Pennsylvania who specialize on "Adhesiolysis"
or Minimally Invasive Surgery. But it's too far for me to go to. And
luckily, 2 weeks ago I found one in Riverside, California which I'm
going to see for consultation early next month and he will let me know
if I am a candidate for the procedure. He specialize on this kind of
health situation and also he does bariatric surgery. So, once I see him
next month, I will let everyone of you knows the outcome of my
consultation. Maybe that will help for those who's in need of help that
lives in California. I can relate to all who have this kind of
situation, since I am one of you...suffering from it and seems like most
doctors do not understand. I hate it when most of them told me that I
will have to live with this pain and take pain killers for the rest of
my life. NO! That's not the answer for me...I am keeping my finger
cross that this doctor will be able to help. So I can go back to my
normal life, be able to work again and focus to my family and not the
pains I am having right now. You might also ask your doctor if they can
prescribe you an "Actiq", this medication is like a lollipop and it does
work great. Goodluck to all of us who is suffering from this illness.
Someday, we will be able to do the things we used to do and enjoy life
again.
Sincerely,
--
Maria T. Jackson Las Vegas, Nevada
At Sun, 22 Jun 2003, Katherine wrote:
>
>I explained the pain I've been having in my right side, the burning the
>pulling, the stinging. I explained it's getting worse not better and
>that it happens every time I stand up for more than a few minutes. (My
>doctor was out of town so I saw one of her partners.) I also explained
>that my doctor found adhesions on the right side during the laparoscopy.
>As it turns out, I have a uterine infection along with the adhesion
>pain. White blood cells were elevated and I had a lot of
>pain/tenderness in my uterus. I still have the pain from adhesions
>though and I've been documenting how long it lasts, the severity, etc. I
>have had pain that lasts from five minutes to several hours every day
>this week. And I know it's from the adhesions because it's on the right
>side. (The other pain was on the left side and in the center.) I don't
>have the money necessary to make a trip to Germany at this time and I
>don't even know if it's to the point that I need to go to germany yet.
>I'm sure this is only going to get worse, not better. It's gotten so
>much worse just in the last two months. I don't know what else to do
>except to go back to my doctor and discuss my options.
.