Morris Pierce
At Fri, 31 Jan 2003, Helen Dynda wrote:
>
>Just so you know...
>
>I have sent a lot of information directly to Jess' email address. I
>included information about: Adhesions -- SprayGel adhesion barrier --
>Dr. Kruschinski -- Kath Findlay's email address and the UK Adhesions
>website.
>
>There is HOPE for better days ahead for Jess' brother.
>
>Helen D.
>
>~ ~ ~ ~
>
>At Fri, 31 Jan 2003, jason h rachal wrote:
>>
>>HELLO JESS,
>>
>>WE ARE SO GLAD YOU FOUND THIS SITE. AND TO WATCH SOMEONE SO SMALL SUFFER
>>IS EVEN WORSE.. I AM A SUFFERER FOR ALMOST 8YRS.
>>YOU HAVE COME TO THE RIGHT PLACE FOR HELP. YOU NEED TO GET AS MUCH
>>INFORMATION ON ADHESIONS AND BOWEL OBSTRUCTIONS AND THIS IS THE PLACE TO
>>HELP..
>>
>>HELEN PLEASE GIVE JESS ALL THE INFO THAT YOU HAVE GIVEN TO EVERYONE
>>INCLUDING ME IN THE PAST TO HELP HER LEARN AS MUCH AS POSSIBLE..
>>
>>YOU AND YOUR BROTHER WILL BE IN MY PRAYERS AND LOTS OF HUGS NICKY
>>On Fri, 31 Jan 2003 05:39:12 -0600 X_GRRL_83@hotmail.com (jess) writes:
>>> hi
>>> i feel bad sending you a message because i don't suffer from your
>>> condition but my baby brother does.
>>> at the moment he's in a chicldrens hospital and has been there for
>>> the
>>> last three months(yeah all over christmas and everything) the
>>> problem is
>>> it just doesn't seem to be getting any better and i was wondering if
>>> you
>>> could enlighten me a bit. i really don't understand everything
>>> about
>>> his condition and especially not the problems that have happened
>>> prior
>>> to surgerys!
>>>
>>> to give you a summary on it all basically: dylan was born 17th sept
>>> 1999. he's just gone three and so far he's had at least a dozen
>>> major
>>> surgerys and at least two dozen minor.
>>> when he was born they couldn't diagnose what was wrong for 11 months
>>> and
>>> we only found out then because he got dehydrated while on holidays
>>> in
>>> magaluf and a specialist spotted it then. he was given a colostomy
>>> bag
>>> and had a large part of his intestines removed as well as part of
>>> his
>>> bowel. he was great with the colostomy for a year and then they
>>> tried
>>> to reverse it but that failed so we were back to the colostomy
>>> again. He
>>> was so healthy with the colostomy so the left it for another year
>>> to
>>> give him a chance to gain weight and strength etc etc. so that
>>> brings
>>> us up to last november, he was brought back in for a reversal and
>>> was
>>> only supposed to be in for 3 or 4 days. but two days after the
>>> surgery
>>> they did a scan on his stomach and discovered the part of the
>>> intestine
>>> they had reattatched to his bowel was affected by the disease as
>>> well so
>>> it hadn't joined properly therefore allowing all the waste in his
>>> system
>>> to leak into his stomach giving his septicimia. we nearly lost his
>>> that
>>> time but hte doctors tried so hard to give him every chance at a
>>> normal
>>> life but it wasn't to be unfortunatly. they had to give him the
>>> colostomy back but it's just been up and down since then. the
>>> mia damaged his stomach so badly he can't absorb anything he
>>> eats. i'm watching my little brother fade away to nothing day after
>>> day
>>> and it's killing my whole family and what makes it so much harder
>>> is
>>> that i don't understand why?
>>> apparantly all the problems now are caused by obstructions in his
>>> bowel
>>> and intestine from adhesions or scar tissue.
>>> please help me because it feels like we may lose him and i just
>>> can't
>>> seem to find anything positive at all on the net. nearly every
>>> outcome
>>> is either a colostomy for life or the patient suffers from vomiting
>>> severe constipation among other things.
>>> Is there any solution to this disease or will it just keep eating
>>> away
>>> at him untill theres nothing left?
>>>
>>> --
>>> jess (Dublin, ireland)
>>>
>>> http://www.adhesions.org/forums/listcmds.htm
>>>