My daughter suffering for 10 years
From: bevelliott00@bellsouth.net
Thu Jul 13 12:36:30 2006
My daughter is 25 years old now. She had Hirschprungs Disease as an infant.
She had a colostomy at 3 months old and then resection at one year old. She
was OK until about age 14 when she began to get sick every morning and she
was weak and very tired. Surgery at age 15 revealed massive scarring and
physician described her intestines looking like a bowl noodles with concrete
poured in it,the doctor just closed her up as she was afraid to try to
remove the scar tissue and possibly puncture her intestine. She is having
peritoneal cyst, ovarian cyst and also we were just told about a "horned
uterus"?? She just spent 6 days in the hospital with no diagnosis! Just lots
of test! She has tried to finish her Teaching degree and work.....but she
just couldn't do both....and now I don't think that she can do either one.
She has lost 15 lbs. in 17 days! One of the Colon Rectal Specialist told us
that Adhesions do not cause pain. What would you say to that? Is there any
chance of improving her quality of life? Can this scar tissue be removed
safely? Are there test that we should request? She is at the end of her rope
:-( We live in Daytona Beach, Florida.....can you recommend a physician?
Orlando, Jacksonville, Gainsville, Tampa, Miami....anywhere?
Thank you,
Beverly Elliott