You might want to try a pain clinic, although they've never been of any help to me. Tried a couple nerve blocks which weren't effective.
Also, adhesions do not show up on any type of imaging, so don't hold your breath that a test is going to see whatever's in there. Surgeons are really the only doctors intimating acquainted with adhesions. I wished I had more encouraging information for you. All I can say is to keep asking for help.
Good luck!
Caryn R
>-------------- Original message --------------
From: "IAS Admin (Tracy)" <tracy.joslin@adhesions.org>
> Sender: loftinhouse@gvtc.com (Jules)
> Subject: Re: Left Flank Pain
>
> >>
> >>Hi, I visited this message board a couple of years ago because I thought
> >>I had more adhesions. I had some lysed in 1996 but the pain returned
> >>after about a year so I assumed it was the adhesions. I've been through
> >>a lot of pain and doctors since then, but now I'm better after having a
> >>complete hysterectomy with removal of both ovaries. But I'm still left
> >>with a very aggravating and persistent pain in my left flank area. I've
> >>had this pain for about 5 years and was hoping somehow the hyst. would
> >>take care of it. Well I had the hysterectomy in April of this year but
> >>I'm still left with the pain in my back on the left side right where my
> >>kidney is. But I've had the whole Urology work-up to check for stones,
> >>infection, etc. Everything was normal. I now have a visible knot in
> >>the area of my pain. My doctors think it could be muscular so I'm doing
> >>Physical Therapy exercises everyday. Sometimes I think it's helping but
> >>I always end up laid up on the couch a day to rest my back so I can work
> >>the next day. Physical Activity makes it worse, like lifting or even
> >>bending a lot. And when it hurts, it not only causes pain, it also
> >>makes me feel terrible. It's like that spot on my make contains all my
> >>nerves or something and when it's really hurting bad, I just want to
> >>crawl in a hole and cry. I've been diagnosed with having an Illiopsos
> >>muscle problem, but by what I've read the usually affects you more in
> >>the groin area. Which I used to hurt there, but I don't now. It's all
> >>in the one area in my back. Bowel Movements make the pain worse but I
> >>try my best to stay regular because constipation makes it a lot worse.
> >>When the pain is at it's worst, it hurts to breath. I wonder if maybe
> >>it is adhesions from my transverse colon to my diaphragm. I asked my
> >>gyns to check out that are during my last 2 laprascopic surgeries, but I
> >>have videotapes of the surgery and neither one of them looked there.
> >>They just keep saying it has to be muscular. I'm so frustrated and
> >>tired. This pain makes me very, very tired. I need proof of the pain
> >>so my PCP will continue to give me the 30 vicoprofen a month he gives
> >>which is not enough but I make it through work with those. My house is
> >>a disaster area. I have seen a Physical Rehabilitation specialist about
> >>the pain and she acted like I should not be there that I should be
> >>seeing a Gyn again or something. And their the ones that said it was
> >>muscular and just needed rehabilitating. Erghhhhh! Where do I turn now?
> >>I'm the type that I need to know what's going on in my body so it's
> >>driving me crazy not knowing exactly what it is.... But do I just worry
> >>about living with the pain now? What other tastes can they run? I just
> >>had a follow up CAT scan.... one I had in 1999 showed scarring in left
> >>front bottom of a chest scan. Which is same area as pain, only in the
> >>back. But the follow up scan was completely normal, of course. And
> >>what is this knot on my back. Doctors seem unconcerned about it.... I'm
> >>sorry this is so long, guess I just really needed to vent. Any ideas?
> >>Or anyone else with similar pain? I'm a total loss right now as to what
> >>to do next. BTW, my meds that I already take are Effexor XR,
> >>Wellbutrin, Buspar, Estrogen, Progesterone Cream, Acculate (for coughing
> >>form of Asthma), Neurontin (which does help the pain), and Vicoprofen as
> >>needed (30 to last 30 days). Thanks to anyone that reads this
> >>completely, sorry so long...
> >>
> >>--
> >>Joyce (other posts may have been, BJ or KJ)
> >>
>