Down with the flu and have been watching Dateline for the
past two broadcasts. The first one this past week dealt
with endo and problems associated with Lupron. The second dealt with
the controversy over fibromyalgia. Maria
Shryver has been doing the interviews. Perhaps it is
a good time for all of us to write into http://www.dateline.com
and let them know about ARD and the many problems associated
with it. Since we don't have a high profile celebrity
representing us, and are not considered a "blockbuster",
disease, it may be time that we try to get some
media attention through a mass write in campaign. Others
have accomplished it, why not us?
There is strength in numbers, and I pray this will
be one avenue for putting this disease on the map.
Best wishes to all of you this Millennium,