Over the holidays things got real hectic and I pushed myself to make a
good hoilday season for the family, it was. I still go to the pain
clinic I have had 4 sympathic nerve blocks, the next one will be the
22nd of Feb. Believe it or not they are starting to help. Now if they
continue to helpis the biggie. If not the next step is a morphine pump.
That's all I need are more drugs. NO doctor will talk to me about
surgery. The doctor who "had" me on the waiting list for the O so
famous INTERGEL TM has yet to return my call to see what his great idea
will be now.Who know's???? I have an appointment with the SS office next
week to go through the endless cycle of be turned down for a disease
that few even know exist. The pain is stilll there. The meds help, but
what about life with out meds? what about the quality of life I once
knew?
I am happy to hear of Peggy's great sucess. I am just as saddened by
the loss of Christine. I took my son to a general surgeon a couple of
weeks ago and discussed lysis with him as he removed a cyst from my
son's thigh. HE told me to stay with the pain clinic and off the
operating table. ALL lysis of adhesions are "scam surgeries". When I
told the mileage I had to travel to find a doc to even consider surgery
he said that's why? No "GOOD" doctor will perform surgery if it will
only make things worse. At that time he told me of a woman who insisted
on lysis of adhesions and she died as a result of the surgery. I don't
believe it was Christine because he spoke as though she was from here.
The time frame was correct. So that makes 2 down because of this
dreaded disease.
How many more have to die before we are reconized?
I pray death is over due to this disease, but somehow I can't believe
it.
May God bless us all and soon there may be a cure or at least a way of
fixing us to the point of NO MORE PAIN!!!
I have rambled as usual and I apologise. Thanks for listening and as
Peggy always said "friend who stick together" I love it it the stickin
that keeps us comin back for more. Welcome to all of those who have
joined while I was away.
Teresa