Desperately looking for advice..........
From: Deborah & Jean-Marc (email@example.com)
Fri Jun 9 12:30:59 2000
May 2, 2000, I left the forum feeling defeated and lost to have my 19th
I return to all of you today looking for "HOPE". I am sending my story
from the "quilt"
to share with all of you............Thank you in advance for your advice,
I am 33 years old. I have had 18 surgical procedures since the age of 21.
The last 8 of 9 surgeries were due to bowel obstructions caused by
adhesions(gallbladder also removed). In '99 I underwent 3 surgeries, the
last one, for a bowel obstructions, was in Dec. I am now experiencing signs
of a (partial) bowel obstruction, severe vomiting, lower abdominal cramping,
and minor bloating. The only option presented to me thus far is yet another
surgery, something I would, needless to say, like to avoid. In Jan 2000 I
had to close my retail store, due to poor health. The store had been open
for 2 1/2 years. It had been my life dream to have my own store, sharing
with my clients giftware from all over the world, antiques, French linens,
jewelry and my own artwork (pottery & paintings). We (my husband and I) had
worked so hard to make that store a success. The last year was terribly
difficult for myself and for my family. I had emergency surgery in June,
which resulted in an 8 week hospital stay. In the operating room I was given
an epidermal to be used for pain blocking for after I woke up from the
surgery. During this procedure the doctor punctured the "Dhura", which
resulted in severe 'spinal' head-aches when I awoke from surgery. The first
week in hospital I had to stay in bed and under go a "blood patch" to stop
the (spinal?) fluid from leaking. This resulted in having another partial
obstruction, and having to have NG tubes to stop me from vomiting, then
another tube to feed me. I left the hospital in late July, only to return
again to emergency on August 28,'99 (My Wedding Day!!!) with incapacitating
abdominal pain. I was given a 6 hour pass to get married. A couple of days
later I had my Gall Bladder removed (another 3 weeks in hospital). November
came and I was in hospital again with another partial bowel obstruction. My
surgeon did not think I would be strong enough to have another surgery so
soon, so I was in hospital with a NG tube and heavy narcotics for 2 weeks.
On Dec 07 I returned to hospital. Surgery was performed but this time when I
woke up my digestive system had stopped functioning and my bowel went into
severe spasms. I stayed in hospital for almost 1 month, and was investigated
by several "specialists". One so called GI "specialist" thought that I
should have an IV put into my neck for 6 months to feed me. Another doctor
suggested that a psychiatrist see me,..... my mental state was now being
questioned for.. "it was not possible to have so much pain and require so
many surgeries, just for adhesions... it must be in my head".That was the
"last straw"...those words almost broke me. Some days I feel like I'm going
crazy......I can't stand the idea of going back to hospital, to be cut open
again...I don't want all of those horrible drugs put into my body. I want my
life back! I want to be healthy for my children, my husband, and for me. In
September my husband and I want to hike the "West Coast Trail", for our
"honeymoon" that we missed last year, because of my being sick. I need to
get strong and healthy for this! I am desperately searching for any
alternative or advice that may be offered. Already, it is some psychological
solace to have found this Society and to find out that I am not alone!!
UPDATE: May 3, 2000 Emergency Laparotomy In less than 4 months
adhesions returned covering my abdominal wall. All loops of bowel twisted,
and one loop, in the pelvis, of the small bowel was completely twisted
around over 180 degrees. I am now 4 weeks post-op. I am in constant pain.
The surgeon thinks the bowel has twisted again. Now what do I do?????