Re: This is so scarey
From: Renee Madron (1renee2@gte.net)
Sun Jul 2 22:44:30 2000
At Sun, 2 Jul 2000, Judy Lankes wrote:
>
>At Sun, 2 Jul 2000, stevie wrote:
>>
>>I had a complete hysterectomy 3.5 years ago and I had a laparoscopy done
>>(6months after because of pain that started 3 weeks into recovery from
>>the hysterectomy)it didnt resolve the pain and since I have undergone
>>every test there is. My pain is mostly around the bladder and hurts
>>like heck when it is filling and several doctors assumed it was Ic even
>>though both the cystos I had were not done under general and both were
>>normal. My question is can adhesions cause pain when you push on the
>>bladder area? and it also is very painful when the vaginal anterior side
>>is pushed on. I also have a pulling pain when I bear down.This is all
>>so frightening thinking I will have to go through another surgery, and
>>then I see here so many women suffering with multiple surgeries, I was a
>>normal healthy 44 year old until a cyst on my ovary and a doctor who
>>thought because I was 44 that I had no choice but to have a
>>hysterectomy. The cyst was gone at the time of surgery. How many women
>>out there are scared into a surgery only to end up totally worse than
>>they started.I am not bashing doctors but if our female parts are so
>>easy to eliminate, why then cant adhesion prevention and information
>>about them be practiced more often? I was never informed on the risks of
>>adhesion formation and the complications after from them.
>
>--
>=====================================================
>Stevie, this is Judy from Southern California. I am a 48+ year old
>women with no more reproductive organs, history of adhesions, etc. 5
>surgeries in 20 years. Last surgery removed last ovary and tube, due to
>a cyst. Gyno surgeon say numerous adhesions, but didn't take them all
>'down', because there were too many, and they were 'translucent' anyway,
>which is a lot of bull, since adhesions get thicker/more fibrous and
>smaller over time.
>
>Adhesions can cause pain in the strangest places. Per my former pelvic
>floor massage/myofacial release therapist, there are adhesions around my
>psoas muscle (big muscle) and hip flexor muscle, which goes somehow
>through the gaps in pelvic bone, which cause lower back sciatica pain,
>on same side as abdominal pain. I have a lot of pain when bearing down,
>when trying to hold my urine whilst running to bathroom, while trying to
>"hold/grasp" husband's penis during intercourse. Sorry about being so
>graphic. Just wanted to qualify and relate my experience. Going on for
>4 years, am I insane or what?
>
>My opinion on medical community: A) They don't have the time to do
>research and/or their homework, and it's not life-threatening like
>cancer, heart attack, etc..
>B) I believe the adhesion lysis is such a complex, long drawn out
>surgical procedure, the it isn't cost-effective for them. ie: they book
>surgery rooms, nurses, anesthesiologists, etc. for a certain length of
>time with a certain "PunchList" of tools required. It's an assembly
>line of sorts. It costs them more money to do this kind of skilled,
>detailed work, and probably (just guessing), if you watch ER or Chicago
>Hope, the drs. and admins have meetings where they decide what and how
>many of each procedure they are going to do and what's the profit. The
>pharmaceutical companies are doing research into these new products to
>pump up their profits, but convincing the medical community and FDA of
>their 'efficacy' is another story.
>
>I guess we have to inform ourselves (thank God for the Web), since a lot
>of these 'professionals' aren't doing their jobs and informing us. Also,
>not everybody gets adhesions after surgery, and the only way to detect
>and/or eliminate them is through surgery. Catch 22...it sucks.
>
>So it's up to the individual to do the research, and luck or God or
>places like this website leads you to a source
>that can help.
>
>Personally, I'm waiting for a better gel/liquid or something that can
>give me a better chance of forming adhesions so quickly, and give me
>more leadtime without pain. Am I living in a fantasy world? Maybe, yes,
>and meanwhile my suffering affects every area of my life. But I'm not
>going to get 'cut again' until somebody will give me a chance of a
>possibility of success.
>
>I don't know if this will help you at all, except to let you know you
>are not alone.
>
>Judy
>
>--
>Judy in Southern California (I am 'BunkyBare' in AIM [aol instant messenger] and am '15259612' in ICQ, if you want to chat, rather than e-mail.
>
I have to totally agree with all of the above, in regards to the medical
professionals (no bashing intended of course). A prime example would
be, last year I was sent to a general surgeon, because my Gyn told me,
that "my problem wasn’t his problem", but anyway. After surgery, (which
was removal of four abdominal nerves), the doctor stated, that there was
an abundant amount of adhesions, but he wasn’t going to bother them. I
questioned him, as to why he wouldn’t treat them or me. He stated,
"Because of Liabilities to me, my practice, staff, and partnership, as
well as to the hospital"! By that time I was angry, due in part, his
treatment didn’t work and that he was pushing me off and shutting the
door in my face. I did go to this doctor, armed with the latest
information about adhesions, but he snuffed it off and claimed it was
bogus information. Long story short, I, boldly questioned his
competence, forth right and before I left his office he had said some
very nasty things to me and to my husband, about me, my past care, my
future care, and my state of mind. His last words to me were "there is
nothing wrong with you, your problem is in your mind. Furthermore, you
should go back to "Tennessee" to your previous doctor for treatment". My
point is, physicians (not all, but most) haven’t been taught compassion,
in regards to patients. Now days, they are more worried with how much
time and energy it is going to take to complete a procedure, how much,
they personally, are going to gain, and so on. Not only that, but I see
that, the many types of insurance providers standing in the way of
growth in the medical world. After all, they do have a great deal of
"say so" in the whole process. We do have to stand up for ourselves, as
well as advocate in our own behalf, otherwise we are set out in the
midst of wolves, scavenging for what is left over. I don’t know about
the rest of you, but I get tired of the bureaucratic red tape and hog
wash, but if we don’t band together and make our cause known, "WE" are
going to be left on the side lines. And this is true in all aspects of
the medical world, regardless of what realm. Oh dear, I am sorry for my
rambling on, but this condition and negative professional responses, has
motivated me to fight and knowing, that there are so many like me, with
the same condition, makes me feel WONDERFUL about the future progress of
adhesions cures.