LNewman@milbank.com wrote:
>
> The reason, as always, does not have anything (in my opinion) to do
> with surgery; quite the opposite, they believe that if this thing got
> exposure, people that do not have it will jump on the bandwagon and
> start to file for disability, workman's comp., and the list goes on.
> Does anyone remember carpal tunnel (sp?) syndrome? As with anything
> "new" they always fear that it will turn into this black hole and it
> is time that we organize and put competent, skilled and knowledgeable
> people on programs that count to state our true plight, show examples
> by having someone from every stage of the pain (from mild to severe
> cases) and hear or have read aloud, patients for whom pain meds are
> either denied or given but in very low dosage. Put people that "do
> not look sick" as we just read about that statement, along with people
> that look like they are going to drop out at any given moment. I had
> already suggested a visit to Congress (just like Michael J. Fox did),
> have an affair of some sort, get some endorsements, and lastly, ask to
> speak at drs.' conventions all over the world. Come on now, there are
> MORE than enough of us to cover the entire US of A, and all of us here
> on earth have a purpose, if you haven't found yours yet, you have
> now. Why can't each and every one of us start a support group in your
> neighborhood and tie into a group in each state. Heck, if Avon can go
> worldwide, why can't we?
>
> All I am saying is this, if we don't do it for ourselves, who will?
>
> -----Original Message-----
> From: mhaya0902@aol.com [SMTP:mhaya0902@aol.com]
> Sent: Monday, July 03, 2000 12:34 AM
> To: Multiple recipients of list ADHESIONS
> Subject: Dateline - Feature on Chronic Pelvic Pain
>
> I have just finished watching DATELINE, and one of
> the featured segments concerned a woman who suffered
> chronic pelvic pain and the cause seemed to be related
> to a buried varicose vein in the pelvis. It seems an
> M.D. in Johns Hopkins is able to block some of the
> culprit veins, and has brought about pain relief for
> some women.
> I was disturbed by the fact that Dr. Arnat(sp?)
> listed other pelvic pain causative factors including
> endo., but as usual, no mention of adhesions as a possible
> problem. I would suggest that perhaps DATELINE needs
> to hear from some of us. Research is based on monetary
> return, and I am convinced the amount of money spent on barrier
> research
> will be dependent on the perception that there is a huge need.
> If
> varicose veins can get some
> recognition, why is there such hesitancy to feature the
> adhesion issue? Why is this issue always getting bypassed?
> Is it because of the link to surgery? I wonder....
> Anne H.
>
> http://www.adhesions.org/forums/listcmds.htm
>
> This e-mail message may contain legally privileged and/or confidential
>
> information. If you are not the intended recipient(s), or the employee
>
> or agent responsible for delivery of this message to the intended
> recipient(s), you are hereby notified that any dissemination,
> distribution or copying of this e-mail message is strictly prohibited.
>
> If you have received this message in error, please immediately notify
> the sender and delete this e-mail message from your computer.
>