George Perry wrote:
> Would it be our personal story like what we may have posted on the
> internet? If you or anyone else out there happens to have addresses of
> these news sources, please pass them on. I am with you on doing what
> ever it takes to bring attention to the cause. There are plenty who
> visit here who feel bad and just don't have the strenght, but for
> those who may be feeling up to it, it is up to us to carry that torch
> for the rest. There is truly strenght in numbers. Let's pass on any
> info we can to each other on getting this disease out in the open and
> to have our voices heard. Sherry P
>
>> ----- Original Message -----
> From: Renee Madron
> To: Multiple recipients of list ADHESIONS
> Sent: Monday, July 03, 2000 1:08 PM
> Subject: Re: Dateline - Feature on Chronic Pelvic Pain
> If each of us, on a daily basis, send dateline and other
> news sources, our story in full text along with site
> addresses of information, they may in fact take a look into
> this disease. You know, after a while they may get tired of
> seeing the information and may, may just open up this
> tremendous can of worms for the public, only to appease us.
> There is enough of us in this society to spark the interest
> of many, if there is a willingness to step forward. I am all
> for whatever it takes to bring attention to the cause.
>
> LNewman@milbank.com wrote:
>
> >
> > The reason, as always, does not have anything (in my
> > opinion) to do with surgery; quite the opposite, they
> > believe that if this thing got exposure, people that do
> > not have it will jump on the bandwagon and start to file
> > for disability, workman's comp., and the list goes on.
> > Does anyone remember carpal tunnel (sp?) syndrome? As
> > with anything "new" they always fear that it will turn
> > into this black hole and it is time that we organize and
> > put competent, skilled and knowledgeable people on
> > programs that count to state our true plight, show
> > examples by having someone from every stage of the pain
> > (from mild to severe cases) and hear or have read aloud,
> > patients for whom pain meds are either denied or given but
> > in very low dosage. Put people that "do not look sick" as
> > we just read about that statement, along with people that
> > look like they are going to drop out at any given moment.
> > I had already suggested a visit to Congress (just like
> > Michael J. Fox did), have an affair of some sort, get some
> > endorsements, and lastly, ask to speak at drs.'
> > conventions all over the world. Come on now, there are
> > MORE than enough of us to cover the entire US of A, and
> > all of us here on earth have a purpose, if you haven't
> > found yours yet, you have now. Why can't each and every
> > one of us start a support group in your neighborhood and
> > tie into a group in each state. Heck, if Avon can go
> > worldwide, why can't we?
> >
> > All I am saying is this, if we don't do it for ourselves,
> > who will?
> >
> > -----Original Message-----
> > From: mhaya0902@aol.com [SMTP:mhaya0902@aol.com]
> > Sent: Monday, July 03, 2000 12:34 AM
> > To: Multiple recipients of list ADHESIONS
> > Subject: Dateline - Feature on Chronic Pelvic
> > Pain
> >
> > I have just finished watching DATELINE, and one of
> > the featured segments concerned a woman who suffered
> > chronic pelvic pain and the cause seemed to be
> > related
> > to a buried varicose vein in the pelvis. It seems an
> >
> > M.D. in Johns Hopkins is able to block some of the
> > culprit veins, and has brought about pain relief for
> > some women.
> > I was disturbed by the fact that Dr. Arnat(sp?)
> > listed other pelvic pain causative factors including
> > endo., but as usual, no mention of adhesions as a
> > possible
> > problem. I would suggest that perhaps DATELINE needs
> >
> > to hear from some of us. Research is based on
> > monetary
> > return, and I am convinced the amount of money spent
> > on barrier research
> > will be dependent on the perception that there is a
> > huge need. If
> > varicose veins can get some
> > recognition, why is there such hesitancy to feature
> > the
> > adhesion issue? Why is this issue always getting
> > bypassed?
> > Is it because of the link to surgery? I wonder....
> > Anne H.
> >
> > http://www.adhesions.org/forums/listcmds.htm
> >
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