Marla wrote:
> Every day it is then. What other sources are you sending it to?
>
> Marla
>
> -----Original Message-----
> From: Renee Madron <1renee2@gte.net>
> To: Multiple recipients of list ADHESIONS <adhesions@forum.obgyn.net>
> Date: Monday, July 03, 2000 1:09 PM
> Subject: Re: Dateline - Feature on Chronic Pelvic Pain
>
> >If each of us, on a daily basis, send dateline and other news sources,
> >our story in full text along with site addresses of information, they
> >may in fact take a look into this disease. You know, after a while they
> >may get tired of seeing the information and may, may just open up this
> >tremendous can of worms for the public, only to appease us. There is
> >enough of us in this society to spark the interest of many, if there is
> >a willingness to step forward. I am all for whatever it takes to bring
> >attention to the cause.
> >
> >LNewman@milbank.com wrote:
> >
> >>
> >> The reason, as always, does not have anything (in my opinion) to do
> >> with surgery; quite the opposite, they believe that if this thing got
> >> exposure, people that do not have it will jump on the bandwagon and
> >> start to file for disability, workman's comp., and the list goes on.
> >> Does anyone remember carpal tunnel (sp?) syndrome? As with anything
> >> "new" they always fear that it will turn into this black hole and it
> >> is time that we organize and put competent, skilled and knowledgeable
> >> people on programs that count to state our true plight, show examples
> >> by having someone from every stage of the pain (from mild to severe
> >> cases) and hear or have read aloud, patients for whom pain meds are
> >> either denied or given but in very low dosage. Put people that "do
> >> not look sick" as we just read about that statement, along with people
> >> that look like they are going to drop out at any given moment. I had
> >> already suggested a visit to Congress (just like Michael J. Fox did),
> >> have an affair of some sort, get some endorsements, and lastly, ask to
> >> speak at drs.' conventions all over the world. Come on now, there are
> >> MORE than enough of us to cover the entire US of A, and all of us here
> >> on earth have a purpose, if you haven't found yours yet, you have
> >> now. Why can't each and every one of us start a support group in your
> >> neighborhood and tie into a group in each state. Heck, if Avon can go
> >> worldwide, why can't we?
> >>
> >> All I am saying is this, if we don't do it for ourselves, who will?
> >>
> >> -----Original Message-----
> >> From: mhaya0902@aol.com [SMTP:mhaya0902@aol.com]
> >> Sent: Monday, July 03, 2000 12:34 AM
> >> To: Multiple recipients of list ADHESIONS
> >> Subject: Dateline - Feature on Chronic Pelvic Pain
> >>
> >> I have just finished watching DATELINE, and one of
> >> the featured segments concerned a woman who suffered
> >> chronic pelvic pain and the cause seemed to be related
> >> to a buried varicose vein in the pelvis. It seems an
> >> M.D. in Johns Hopkins is able to block some of the
> >> culprit veins, and has brought about pain relief for
> >> some women.
> >> I was disturbed by the fact that Dr. Arnat(sp?)
> >> listed other pelvic pain causative factors including
> >> endo., but as usual, no mention of adhesions as a possible
> >> problem. I would suggest that perhaps DATELINE needs
> >> to hear from some of us. Research is based on monetary
> >> return, and I am convinced the amount of money spent on barrier
> >> research
> >> will be dependent on the perception that there is a huge need.
> >> If
> >> varicose veins can get some
> >> recognition, why is there such hesitancy to feature the
> >> adhesion issue? Why is this issue always getting bypassed?
> >> Is it because of the link to surgery? I wonder....
> >> Anne H.
> >>
> >> http://www.adhesions.org/forums/listcmds.htm
> >>
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