Re: New to this forum & need HELP!

From: toni welsh (twelsh1@hotmail.com)
Mon Jul 31 14:14:39 2000


At Mon, 31 Jul 2000, Robin wrote: >
>Hi Suzanne,,, Welcome home!! I started off with Darvacet & percacet &
>demeral,& others in that range, which none really helped my pain. Then
>I discovered Vicodine. It is the only thing that seemed to help. Now I
>am using the duragesic patch, Vicodine,10mg, (4-6aday),& Equagesic 200
>about 6 aday. It keeps my pain mainly under control, but I am never
>pain free. I also use a tens unit, it helps too. I did use acupunture
>once. He was a quack, but he did use a little ball (the size of a pen
>head) on my ears that I could rub & it took away my pain for a few
>seconds, They only stay on for 5 days, (I kept mine for 7 days) The only
>thing was, I rubbed little blisters on my ears from rubbing them so
>much. They were on a nerve or something, that when pressure was
>applied, it blocked my abdominal pain. The reason I said he was a quack
>was that he told me my eyes really werent green, they appeared green
>because my bowles were backed up! My mom laughted when I told her that.
>I was born with green eyes!! First you need to find a compassionate Dr
>that will treat the pain. As far as the meds, you have to try them
>until you find the right med or combination to control your pain. Try
>what every you can to ease the pain. You never know what will help you,
>every one is different. I have also had physical theraphy with deep
>muscle massage. I know you will feel welcomed & you will find the
>information to end your search.
>
>--
>Robin
>
>At Mon, 31 Jul 2000, suzanne wrote:
>>
>>Hi, I'm new to this forum. I am so glad I found you! I had hyst in 6/99
>>for endo, but endo returned. I then had lap surgery with an endo
>>specialist in 2/00. I am endo pain free, but my adhesion pain has
>>returned. I felt so good after each of the surgeries. But slowly my
>>back stiffens up. I had severe endo with lots of adhesions. My back is
>>stiff, like loss of motion with pain running down my left leg. I have
>>seen many back/spine specialists and they could never find anything
>>wrong with my back. Now, I know for sure, the pain I am feeling is from
>>adhesions. My question to all of you is what can I do? Stretching seems
>>to give me temporary relief. Has anyone tried yoga, how about deep
>>massage, how about acupuncture? What are the best medications to take
>>for adhesion pain? Also, does the pain get worse over time or what? If
>>anyone can help me at all, give me some alternative treatments for the
>>time-being, I do know that another surgery may be inevitable. Thank you
>>very much. suzanne
>
>--
>Robin
>

Like everyone said, welcome home, I have been gone for awhile, and was so shocked to see the bad news on the board, I was so sorry to hear of Karla, I hope you are doin gokay, Karla, I have had you in my prayers, and for MArion's family! I will keep you all on my thoughts and prayers, I have been through so much here lately I feel like I did not want to pull you all down with me.

Susanne, I too have alot of stiffness in the lower back especially if I am trying to bend over some, and then to straighten up it is very painful, but at the moment I am too terribly afraid of surgery, and have now chosen to live with it. I am still seeing a pain clinic, and I ma on 1200 mgs of neurotin, 10 mgs oxycontin, and 100 mgs of trazadone. They are thinkinng of putting me on the duragesic patch, but I am afaid of upsetting the stomach even more than what I am on. Good luck with your search for meds, and please all of you, I am sorry I have not been here for you, but when you feel you are too down you do not want to hurt your friends, and that you all still are.

Thinking about you girls all the time, Toni


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