>From: ladybarber@altvista.com (ardie amador)
>Reply-To: adhesions@obgyn.net
>To: Multiple recipients of list ADHESIONS
><adhesions@mail.medispecialty.com>
>Subject: Re: teresa-Question on adhesions
>Date: Tue, 22 Aug 2000 22:38:00 -0500
>
>At Sun, 24 Oct 1999, teresa hunt wrote:
> >
> >Toni, I am so sorry to hear of your pain. I do know of the pain of
> >constipation and still experience it EVERY time I go. The patch helps me
>to
> >tolerate much more. It is not suppose to be as constipating as the
>pills.
> >In the past month (drs orders) I have taken right at 200 peri-colace. I
>eat
> >apples,drink juice,bran and high fiber stuff I think it makes it worse.
>I
> >do drink lots of liquids. Just pee a lot.
> >I go about every 4-6 days and then not as much as I've took in. Every so
> >often about once a month I'll get more out but not enough. (sorry so
>crude).
> > I hope we all will find peace with the pain before long, we have all
> >suffered too much. ANY at all is too much.
> >God Bless Teresa
> >
> >>From: twelsh1@webtv.com (toni welsh)
> >>Reply-To: adhesions@obgyn.net
> >>To: Multiple recipients of list ADHESIONS <adhesions@talk.obgyn.net>
> >>Subject: Re: teresa-Question on adhesions
> >>Date: Sun, 24 Oct 1999 11:47:49 -0500
> >>
> >>At Sun, 24 Oct 1999, Gina wrote:
> >> >
> >> >Hi Teresa,
> >> >What new meds that really work??? Tell all! :-)
> >> >Yes I have noticed the people giving the most advise on how to deal
>with
> >> >adhesions, have never had one themselves. There should be a rule
>about
> >> >that! LOL
> >> >Hugs,
> >> >Gina
> >> >
> >> >At Sat, 23 Oct 1999, teresa hunt wrote:
> >> >>
> >> >>Hi Gina: I have a bad few days and hevan't been on-line. (Getting
> >>adjusted
> >> >>to the new meds which REALLY WORK). Family and friends don't know
>what
> >>will
> >> >>make your pain and adhesions better unless they have experienced them
> >> >>personally. That old saying about walking a mile in my shoes goes
>for
> >> >>adhesions too!!! Keep the faith and it's NEVER too late to do
>something
> >> >>about it. Teresa
> >> >>
> >> >>>From: gina@maine.rr.com (Gina)
> >> >>>Reply-To: adhesions@obgyn.net
> >> >>>To: Multiple recipients of list ADHESIONS <adhesions@talk.obgyn.net>
> >> >>>Subject: Question on adhesions
> >> >>>Date: Thu, 21 Oct 1999 10:06:19 -0500
> >> >>>
> >> >>>I am new here, though by all rights I should have been here 18 years
> >>ago
> >> >>>because that's when my adventure with adhesions began. Only I
>didn't
> >> >>>know it (and docs didn't dx it) til I had surgery 8/12/99. Now I am
> >> >>>known as "adhesion prone". Yippeeee! (BTW, I have a weird sense of
> >> >>>humor, better to laugh than cry most days).
> >> >>>
> >> >>>Anyway, it wasn't til after my 2nd surgery (9/15/99) that I
>researched
> >> >>>adhesions and found out it was possible to prevent them with
>exercise
> >> >>>immediately after surgery, or with barriers, etc. No one told
>me--even
> >> >>>though they knew I was adhesion prone. So I laid flat for 2 weeks
> >>solid
> >> >>>"resting", hardly ever moving because I was told not to "over-do"
>it,
> >> >>>etc. Now I find out it was the worst thing I could have done! It
>"set"
> >> >>>my new adhesions permanently doing that, I think?
> >> >>>
> >> >>>Anyway I am getting tired of everyone (friends & family) telling me
>the
> >> >>>best thing for adhesions is exercise. Sure in the beginning that
>might
> >> >>>be true to keep them from attaching. But at 5 weeks post-op, when
>they
> >> >>>have already started to harden and be permanently attached, most
> >> >>>exercise hurts!!! ALOT! I can walk for a short time comfortably, but
> >>any
> >> >>>bending, twisting, tummy and lower back area stuff is excruciating.
> >> >>>
> >> >>>Are they right? Should I be trying to exercise through the pain to
> >> >>>detach them? Are my new adhesions permanent at 5 weeks, and hard? Is
> >> >>>there anything I can do besides surgery and pills, to get rid of the
> >> >>>pain and the adhesions at 5 weeks post-op?
> >> >>>
> >> >>>My doc who did the surgery told me that yes I do have new adhesions
> >> >>>again in pelvic area, and I will just have to live with chronic
>pain.
> >>He
> >> >>>told me that at 2 & 1/2 weeks post-op! He gave up. He said no one
>will
> >> >>>operate to remove adhesions only, just because it hurts. He also
>said
> >> >>>in my case any surgery to remove adhesions would make more (even
> >> >>>laprascopy since that was how these last 2 surgeries were done, and
> >>both
> >> >>>created new adhesions). I am not ready to accept "chronic pain"
>when
> >>it
> >> >>>seems early enough to do SOME thing about them?
> >> >>>Thanks,
> >> >>>Gina
> >> >>>
> >>
> >>yes, teresa, please tell us what is working for you. yesterda I could
> >>not even walk and to try to move the pain and costricting pain was
> >>terrible. I have not gone to the bathroom for awhile, and I do think
> >>that was part of the problem, but some of my drs just do not listen to
> >>me, if I do not take a laxative of some sort, and they tell me senekot
> >>being a vegetable laxative, will not hurt my bowel, I do not go. I am
> >>feeling now my bowel has become reliant on laxatives.
> >>
> >>last week I took it on monday night, and the cramps kept me awak for 3
> >>hours, and finally I did go, but it hurts to ave a bowel movement.
> >>People who do not ave this problem do not understand the terrible pain.
> >>For a lot of people it is just normal to go everyday. They do not
> >>understand my fear, My mother dies after an epeisode kind of a bowel
> >>obstruction, but I know now she had a different situatio. her bowel
> >>died, and te blood supply was cut off to her bowel, and the drs kept
> >>telling her it was the flu. Well she had 3 surgeries in 3 days 6 hours
> >>long, and we lost her. She was very ill and I know this. We did not
> >>know it then, she trusted her drs. WRONG!
> >>
> >>Well we lost another family member, he was 70 years old, but he had a
> >>colonoscopy in June, and the dr DID tell him he could not get the scope
> >>in, and he did have a blockage, well he was told to see a surgeon, and
> >>he didn't. he got sicl on a Sunday, and they had to remove 7 inches of
> >>his bowel, but he had already develped an infection, they put a
> >>temporarycolostomy on him and gave him 48 hours and they would have to
> >>go back in, well 28 hours later they performed emergency urgery again,
> >>and he died he next night. Tis WAS a bowel obstruction that killed him
> >>
> >>My feras a so real and strong, and I am extremely scared of ANYMORE
> >>surgery unless there is an obstruction, but when you have this happen in
> >>your family so many times, and crohns disease in your son and sister the
> >>fears are greater, I am scared, and very scared. Today I am feeling
> >>better, but I am convinced that I am ahving partial obstructions at
> >>times, do to the extreme pain I get at times. Do any of you understand
> >>this fear, or am I crazy?
> >>
> >>I hope today finds you all happy, I am to the poit now where I do not
> >>even feel like going out too often, and that is not me. I guess I just
> >>want to feel good again, and time keeps going on. when is some one
> >>going to find a way to help us. Boy I did not expect this to be so
> >>long, sorry!
> >>
> >>Love to all,
> >>Toni
> >>
>
>--
>I also am new to this site, and was glad for me to find that I am not the
>only one having these problems. I would like to pass on a little helpful
>hint for the constipation that I found in an old home remedy book of all
>places. Every morning before you eat or drink anything else, drink 2
>glasses cold water. I didn't believe it at first, but I find that if i
>follow through, within 2 hours i am having a bowel movement. It does work
>really well, at least for me, and God, it is so cheap. Why can't all meds
>work like this or be that inexpensive.
>Try it, and I hope it works for you as well as it has for me.
>