I think you should contact Helen Dynda. She helped me with a lot of information about adhesions, treatments, etc. She recommended Dr. Reich and Dr. Redan in Scranton, PA. They have opened a new Adhesion Clinic at the Community Hospital there. They believe adhesions cause pain(what a concept) and they know the best way to treat these adhesions without causing further damage. I am arranging surgery with them in November. I have had adhesions for over 20 years now, but was actually diagnosed these past 3 years. More recently had exploratory surgery for a "cyst" of adhesions. I have great faith in these doctors and I am sure they can give you some advice.
Good luck to you.
At Tue, 3 Oct 2000, Kimmi wrote:
>
>Hello Everyone,
>I am completely frustrated and so unsure what to do next.
>Was hoping some fellow pain suffers maybe able to help.
>Here is a brief bio of me so you can understand.
>I have been dealing with pain for 17 years, Last 5 years turned
>dibilatating.I am completely disabled with pain from upper and lower
>abdomen, hips,pelvis,bladder, bowels,chronic head neck and face pain,
>disc problems in both my neck and back, intercystial cystis,Hiatial
>hernia,ulcers gerd,severe IBS,Fibro,MPS,Osteo Arthritis,Bursitis, Frozen
>shoulder and sadly more.
>I have had 12 abdominal surgeries already. I had a full TAH 4 1/2 years
>ago for stage 5 endo,adhesions,fibroids cyst,infections the works.
>I am 33 years old, after going from doctor to doctor in hopes of what to
>do next with the chronic pain I am suffering with, I went back to my old
>gyn doctor even though i have no gyn organs left. At his office
>yesterday he decided it was time to go back in clean up the adhesions
>and see what else is going on. But since I have no gyn organs left he
>sent me a general surgeon today for a second opinion. Now first off I
>was so thrilled that my old gyn doctor wanted to do surgery, first
>doctor who wanted to do something for me other than medicate and test.
>Well the first words out of this surgeons mouth was.ADHESIONS DON"T
>CAUSE PAIN>> OK SCREAM WITH ME....GRRRRRRRR.. ok the last 17 years have
>just been fun, knew i was going to be in trouble.
>He said there is no doubt that the adhesions were there but would not
>recommend surgery, he would rather do more test and do the wait and see
>thing again..been waiting and seeing 5 years, have done this route over
>and over again.
>Lets wait and see if I have a full bowel obstruction, I have an appendix
>still imagine that after 12 surgeries, that appendix has been covered
>with adhesions has had the ovary removed from it twice they retacked it
>to put it in place again, lets wait and see if it ruptures.He would
>rather wait to see if something life threatening happens than open me up
>to clean up adhesions,endo and or other things that don't seem life
>threatening at the moment.
>He wants to take another inovassive approach. He is almost positive
>that the endometriosis is back, and has invaded probably all of the
>abdomen,bowels bladder ect.. been there before why not.His coarse of
>treatment would be to remove me from my Estrogen, and see if any of it
>dies off. Well considering I am 33 years old and already have bone
>loss,and arthritis, keeping me on the estrogen gyn doctor said is a
>must. Besides all the abdominal problems I suffer with many other
>medical conditions which cause pain. I am in pain 24 hours aday, even
>though I am on large dose of demerol,Muscle relaxers and Neurotin,along
>with other meds to help control some of my problems. The medications
>are not working no matter how high they keep upping them. GI doctor
>agreed surgery would be a good thing. Urologist said it would be a good
>thing, but surgeon said lets wait and see. I am in complete tears with
>pain and frustration.
>Where do I go what do I do next?
>I even told GYN that I know its possible for more adhesions and endo to
>come back,but would rather have a little bit of relief than no relief at
>all. Shouldn't the surgeon want to do whats best for the patient,whats
>best for me is to be out of pain even for a minute. I finally had some
>hope yesterday when GYN wanted to take a peak and then it was crushed
>again by someone else who wants to pass the buck to another doctor.
>I figured if anyone could understand my frustration it would be you all.
>thanks for listening
>Kimmi