Re: Adhesion-Related Disease ( ARD )...Important information!!!

From: NANCY (TOOOLGIRLL@AOL.COM)
Tue Oct 3 21:39:51 2000


At Sun, 03 Sep 2000, Helen Dynda wrote: >
>Bev has recently given the following excellent advice: "Become your own
>BEST doctor!!!" Learn as much as you can about your adhesion-related
>disease (ARD)! You will discover that the more knowledge you have about
>ARD the less you will fear it; and BEST OF ALL, you will begin to learn
>how to make better choices as to what your next step will be. This
>knowledge about adhesions will eventually give you peace of mind; and
>you will find that the time, which you spent learning about adhesions
>and adhesion related concerns, will be worth its weight in gold. You
>will be empowered once you know what the causes adhesions and/or
>endometrial implants (scar tissue) are...and what you need to do. More
>importantly, you will begin to understand that what you do about your
>adhesion problems will make all the difference in the world to you!!
>
>The most important fact you will learn is: Surgery after surgery IS NOT
>the answer!!! Each surgery will cause even more adhesions to form; and
>as a result you will begin to experience even more pain. Then at some
>point your doctor may tell you: "Adhesions don't cause pain; you need
>to have a mental health evaluation."..."There is nothing more I can do
>for you...you are going to have to learn to live with it."..."You need
>to get into pain management."..."I will not do another surgery for you
>unless you have an emergency bowel obstruction."
>
>Or maybe your doctor will say; "This is not within my specialty. You
>will need to see a gastroenterologist (or whatever other
>specialty)...which starts a pattern of you being juggled from one
>medical specialty to another...without answers and without
>success...which creates a real state of confusion for you. Eventually,
>after seeing sooooo many doctors, you don't know what to do! Because by
>now you have lost faith and trust in the medical profession. It is at
>this point that you finally start thinking, "Maybe it is all in my head.
> Maybe I do need to get a mental health evaluation."
>
>At some point, before you have reached the actual stage where you are
>questioning your own saniety, you will notice that you are having family
>and relationship problems. People, who have been friends for many
>years, eventually are no longer in your life. So many times you have
>been told that all of your tests were normal or negative!! If you think
>you are confused by this, it is quite possible that these people are
>confused as well or they may no longer believe you either...that you are
>really suffering severe chronic pain.
>
>And if they don't believe you, how is your immediate family going to
>believe you? You start to recognize that your relationships within your
>immediate family has changed. Your spouse is drawn into doing tasks,
>which you are unable to do; and as a result you no longer feel a
>special intimate bond with your spouse. Your children? You eventually
>find them doing for you, what you as their mother should be doing for
>them!! As a result of not getting the right kind of help for the
>adhesions, which are causing your chronic pain, your life has become
>very dysfunctional. BUT you can either become consumed by this
>dysfunctionality or you can make a decision to do something about it.
>You do have a choice here!!
>
>What choice do you have? Instead of wasting money and precious time by
>having "surgery after surgery" with whatever surgeon happens to be
>handy, you will learn that the most important step you can take is to
>seek the *best adhesions specialist* you can find!!!!
>
>Not every surgeon wants to do surgery for a patient, who has
>adhesions!!! Not every surgeon has patience, which is soooo necessary!!
> Not every surgeon has the skill and experience needed for adhesiolysis
>procedures WHY? Because adhesion surgeries are very difficult and
>risky surgeries for the patient. Adhesion surgeries require great skill
>on the part of the adhesion specialist; and probably most important of
>all, adhesion surgeries require unlimited patience on the part of the
>surgeon. I have actually viewed a video of a 10 hour adhesion surgery,
>which which Dr. Harry Reich did for Deb in April 1999. In viewing her
>video, it was absolutely impossible for me to see her individual
>organs!! Her abdominal/pelvic cavity looked like someone had sprayed
>Crazy Glue over ALL of her organs!!! One year later Deb is
>adhesion-free and pain-free!!
>
>What surgeon wants to spend 10 hours doing a surgery for the complex
>situations that adhesions cause??? What insurance company wants to
>reimburse a surgeon for a procedure, which can take as many as 10 hours
>to complete??? What hospital wants to provide time in the operating
>room for such a long surgical procedure...especially when we know that
>some doctors don't even acknowledge that adhesions do cause pain??? How
>many surgeons will agree to do surgery for a bowel obstruction...unless
>it becomes an emergency situation??? It has been my experience that
>doctors expect their adhesions patients to have an emergency bowel
>obstruction before they will do surgery!!!
>
>I previously said that you have a choice! That choice is yours alone to
>make!! You are the one who is suffering!! I encourage you to seek
>help from a surgeon, who specializes in helping people who have severe
>adhesion problems!! An adhesion specialist has had advanced training in
>laparoscopic microsurgical techniques. He has logged thousands of hours
>in doing laparoscopic surgical procedures!! Their experience has taught
>them what techniques and skills are required by them in order to give
>their patients the best possible chance to become as free from adhesions
>as possible. It is true, however, that NO surgeon can guarantee that
>their patient will become completely adhesion-free!! But with an
>adhesion specialist doing your surgery, you have the BEST POSSIBLE
>CHANCE to get your life back !!!
>
>Some of these adhesion specialists will suggest a second look
>laparoscopy for a patient whose adhesions have been particularly
>severe...as was true in Mary Pomroy's (Canada) case. This procedure is
>done generally within 10 days of the surgery itself. This procedure is
>an additional way that adhesion specialists are able to help their
>adhesion patients.
>
>This may seem like an expensive step to take; but when you add up all
>the unsuccessful surgeries, which you already have had, you will find
>the adhesion specialist to be a real bargain!! Think of all the pain
>you have had to live with over the years as a result of all of the
>failed surgeries you have gone through!! Think about how ARD is
>affecting your relationships: your spouse's life, your children's
>lives, and most importantly your own life!!
>
>I am aware of several surgeons who qualify as adhesion specialists;
>because they have been having success with the adhesion surgeries, which
>they have done. Their location? California, western Pennsylvania,
>Tennessee, New Jersey, Scranton, PA, and Duisburg, Germany. For more
>information about them, you have my permission to write to me at:
>olddad66@runestone.net . There may be other adhesion specialists
>throughout the USA; but I have not heard about them yet.
>
>Incidentally, as a result of having lived with the chronic pain of
>adhesions for more than 30 years, what I have written is actually from
>my own erperience!! I am planning to seek help from one of these
>adhesion specialists; but I have not made a definite decision yet as to
>whom it will be room for such a long surgical procedure...
>especially when we know that some doctors don't even acknowledge that
>adhesions do cause pain??? How many surgeons will agree to do surgery
>for a bowel obstruction...unless it becomes an emergency situation???
>It has been my experience that doctors expect their adhesions patients
>to have an emergency bowel obstruction before they will do surgery!!!
>
>I previously said that you have a choice! That choice is yours alone to
>make!! You are the one who is suffering!! I encourage you to seek
>help from a surgeon, who specializes in helping people who have severe
>adhesion problems!! An adhesion specialist has had advanced training in
>laparoscopic microsurgical techniques. He has logged thousands of hours
>in doing laparoscopic surgical procedures!! Their experience has taught
>them what techniques and skills are required by them in order to give
>their patients the best possible chance to become as free from adhesions
>as possible. It is true, however, that NO surgeon can guarantee that
>their patient will become completely adhesion-free!! But with an
>adhesion specialist doing your surgery, you have the BEST POSSIBLE
>CHANCE to get your life back !!!
>
>Some of these adhesion specialists will suggest a second look
>laparoscopy for a patient whose adhesions have been particularly
>severe...as was true in Mary Pomroy's (Canada) case. This procedure is
>done generally within 10 days of the surgery itself. This procedure is
>an additional way that adhesion specialists are able to help their
>adhesion patients.
>
>This may seem like an expensive step to take; but when you add up all
>the unsuccessful surgeries, which you already have had, you will find
>the adhesion specialist to be a real bargain!! Think of all the pain
>you have had to live with over the years as a result of all of the
>failed surgeries you have gone through!! Think about how ARD is
>affecting your relationships: your spouse's life, your children's
>lives, and most importantly your own life!!
>
>I am aware of several surgeons who qualify as adhesion specialists;
>because they have been having success with the adhesion surgeries, which
>they have done. Their location? California, western Pennsylvania,
>Tennessee, New Jersey, Scranton, PA, and Duisburg, Germany. For more
>information about them, you have my permission to write to me at:
>olddad66@runestone.net . There may be other adhesion specialists
>throughout the USA; but I have not heard about them yet.
>
>Incidentally, as a result of having lived with the chronic pain of
>adhesions for more than 30 years, what I have written is actually from
>my own erperience!! I am planning to seek help from one of these
>adhesion specialists; but I have not made a definite decision yet as to
>whom it will be.

--
i have read your advise and i stongly will take that into consideration as to my health care concern.. i have now bee a victim of chonic stomach disorder which has been told to me that i has fms... don't belive it at all i no my body and i know that i have adhesions that are obstructing my intestines.. doctor does not think so and says i have had all necessary tests to prove it... i know how i feel and i know that when i sit i feel pressure and i cannot wear a bra or panties without feeling pressure in my stomach area .. i am swollen all the time and feel the erge to have a bowel movement but nothing is there i cannot move it unless it is manipulated into movement.. this is not norman and doctor seems to think i have irritabowel syndrome and fms... he is full of hmo as far as i am concerned i have under gone surgery for gall bladdr and adhesions of lower abdomilal but nothing from belly button up and that is where i feel the pressure... please help .... thanks for you aticle.. i do not feel so alone anymore along with you and my paxil that is thanks so much nancy

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