Re: Adhesions and Endo

From: suzanne (living@nwlink.com)
Tue Dec 5 14:33:27 2000

Marianne, before I had my tah/bso I was dx with ovarian cancer too. Instead they found severe extensive endo & adhesions. Within two months after my hyst, many of my pains returned, and I too felt like I was getting a period and the area where my left ovary was ached so much. My abdominal pain was like hot coals in my belly. My back & hip ached so much, with lots of left leg pain. I realized that my doctor had not removed all the endo during the hyst and I had surgical excision with an endo specialist 8 months after my hyst. He found A LOT more endo and adhesions in me. He also found left ovarian tissue. I feel so much better after my surgery. Actually it was the best I had felt in over 26 years! A couple of months ago the back/hip/leg pain returned and I have difficulty bending and moving. Like I'm frozen up or something. I also have had bowel problems. I also feel a pulling and ache where that darn left ovary used to be, especially during bowel movements. I attribute these pains to adhesions, but of course not sure. My gi doctor feels I have a partial bowel obstruction on the left side.

Is it possible that your doctor did not remove all the endo from you, including microscopic endo? Have you relayed all this info to your doctor? I recently read in the Endometriosis Sourcebook that adhesions can actually be as painful as active endo. I believe, the only way that endo and adhesions can be diagnosed is via surgery.

I am hoping you are able to find answers and solutions to your pain also! Thank you for your words of encouragement, I could really use them. 

--
suzanne


>
>Hi.  I hope you find some relief from your pain.  I had TAH/BSO 1 and
>1/1 years ago for severe endo.  Never knew I had it - I had pelvic pain,
>then they found "cysts" then did a CA125 and suspected possible Ovarian
>C.  Luckily when they opened me up they found stage four endo
>everywhere.  Anyways, I have been feeeling fine up until three weeks
>ago.  I have this constant dull pain in my lower left pelvis - if my
>ovary wasn't gone I would swear that's what it is.  I finally went to my
>regular doc today and he has ordered CAT scan - says that can sometimes
>find adhesions through a CAT scan.  I am of course terrified that there
>is something else wrong - ever since my experience I have a major cancer
>phobia.  Anyways, can you decribe your adhesion pain? Mine pain is dull,
>and sometimes I can't tell if it is my pelvic bone, my groin, or my
>pelvis.  It kindof is a pulling kind of pain, but I can't make it happen
>by moving.  I am also having some back ache.Also feel somedays like I am
>having my period again!
>>Thanks
>Marianne
>
>--
>Marianne
>

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