Re: I'm home =)
From: Nikiti (nikiti13@icqmail.com)
Sun Dec 24 13:52:26 2000
At Sun, 24 Dec 2000, Kate Murphy wrote:
>
>On 24 Dec 2000, at 3:24, Nikiti wrote:
>
>> Hello all,
>> I couldn't believe my eyes when I saw this site, I think I am still in
>> shock! For YEARS I have been suffering with adhesions and pain, they
>> said I have Asherman's Syndrome, which was explained to me as being
>> (quote) "severe, dense adhesions that have pulled my insides together
>> and stuck them like glue"...
>
>Dear Nikiti,
>
>Like you, I've had lots of surgery and have ended up with lots of
>adhesions. I've developed a few little tricks for managing the
>hospital recovery that help to calm me. Maybe they will help a
>little with your new challenge.
>
>First of all, I buy myself a bar of sweet smelling soap -- I like
>Yardley's and some nice hand lotion. Stuck through and through
>with staples and NG tubes and catheters, I can still wash my face
>and hands and feel human!
>
>I have a Walkman and tapes of music that I love. I listen to that at
>night when it is hard to sleep. I also have some meditation tapes
>for those times when I am waiting for some test or for the surgery
>to begin.
>
>I have always been able to wear the Walkman into the OR. Until I
>got a WM with an automatic turnaround, the anesthesiologist
>would turn the tape over for me, even if I was deeply unconscious.
>
>I have a beautiful robe from Victoria's Secret which makes me feel
>glamorous. I wear the hospital nighties so I won't destroy my own
>with gunky stuff, but I have my robe for other times.
>
>I also bring some nice shampoo for that wonderful day when they
>say -- you can have a shower now. They bring me a little shower
>chair and I spend a long, luxurious time under the hot water with
>sweet body wash and my fancy shampoo.
>
>This may all sound crazy to you, like I don't understand your pain
>and the desperation of your situation. I do. These are just ways
>that have helped me cope.
>
>Good luck with the upcoming surgery. You'll be OK!
>
>Love,
>
>Kate
>
>--
>Kate Murphy
>katemm@mindspring.com
>
Kate,
Thank you for writing a reply to my letter =)
You have many great ideas for how to cope with surgery...I guess I spend
so much of my time worrying about how things are going to turn out and
how much more pain I'm going to be in that I forgot to try and relax and
make the best of a horrible situation. I have never met anyone like me
before and so when I tell my fears to my family, doctor, or friends they
do their best to be here for me but they don't truly understand... Thank
you for your ideas and I am for sure going to try and do everything you
suggested. I would do anything to just make this better. Thanks again
Kate =o)
Merry Christmas all.
--
~Nikiti