Keep your spirits up and when you feel low just look at all thepeople on this site that know exactly what you r going through and can truly sympathise with you
kindest regards
Jackie B ENGLAND
>----- Original Message -----
From: Robin <rmasse2333@aol.com>
To: Multiple recipients of list ADHESIONS <adhesions@mail.medispecialty.com>
Sent: Tuesday, December 26, 2000 3:11 PM
Subject: Re: I'm home =)
> All I can say is I know how you felt when you found this site, I still
> feel like that!! It is too bad that you have had to go through so much.
> You will find alot of great information here, use what ever you can to
> help. This place is great for venting as ard (adhesion related desease)
> causes much frustration.
> Welcome home
> Robin
>
> At Sun, 24 Dec 2000, Nikiti wrote:
> >
> >Hello all,
> >I couldn't believe my eyes when I saw this site, I think I am still in
> >shock! For YEARS I have been suffering with adhesions and pain, they
> >said I have Asherman's Syndrome, which was explained to me as being
> >(quote) "severe, dense adhesions that have pulled my insides together
> >and stuck them like glue"... I never knew that there were other people
> >out there that have been through what I have and that continue to suffer
> >just like me. I mean, I knew there MUST be someone else like me
> >somewhere in this world..but I would never know them, I am pleased to
> >see that I am wrong about that. I don't have a life (sexual or other),
> >I suffer daily in horrific pain, I most of the time feel like I am alone
> >and that nobody believes that I am in the pain that I claim to be in...
> >I have supportive family and friends and a wonderful husband that has
> >been with me for all 5 of my surgerys and he never complains...but I
> >still get those awful feelings of being alone and not being believed
> >about my problems. I had my first surgery when I was 16 yrs old.. I
> >had an ovarian cyst on my right ovary and upon opening up my stomach and
> >removing the cyst (along with half of my ovary) the doctors found out
> >that I was born without a left ovary, I have the tube, just no ovary.
> >Then 5 years later I had another cyst (they average grapefruit size and
> >bigger) and they did another surgery, I had mild adhesions but nothing
> >serious, then a few years later, I had another cyst and they were
> >supposed to do a laporoscopy, that ended up being a 9 hour surgery and
> >when I woke up I had tubes everywhere, even one down my nose to keep my
> >stomach empty so it could heal from having been cut on to remove
> >adhesions.. I was in the hospital over a week and the doctor told me
> >that my insides were "obliterated" it was such a mess and he had never
> >seen adhesions so bad that they made a video tape of it and use it at
> >the University as a teaching video! I could not believe what he told
> >me..I had never heard of anything like what he said, my tubes were
> >"glued" on top of my uterus, my "fatpad" had to be taken out, he said
> >basically every organ in my body except my heart and lungs were cut on
> >because of adhesions. Hearing what he told me made me sick! =*( I wish
> >I could say that this was the end of my story...but it is only the
> >begining.. I wont go into detail about the rest because I realize I
> >have written so much already. Now though, I am facing another surgery,
> >2 years ago I had a complete hysterectomy, removing what was left of my
> >ovary and tubes... I didnt want the hysterectomy because I didnt want
> >to go through "the change" so young.. but they promised me if I had it
> >done, I would never have another cyst and I could have a normal life
> >again. Well as many of you who suffer from adhesions and pain know, if
> >anyone can offer you a "normal" life, you would do anything they asked
> >you to do, right? So I agreed. (For a "simple" hysterectomy, I was in
> >surgery for 11 1/2 hours and they had problems with me bleeding and of
> >course I had severe, dense adhesions and everything was once again
> >"glued" together). But now, just a week ago..I was rushed to the
> >hospital in a squad because I thought my bladder had burst or something,
> >I was paralized and the pain was so bad I fainted... after every test
> >known to man was done on me (CT scan, ultra sound, vaginal ultra sound,
> >a pelvic, pap smear, blood samples, urine samples, etc...) they informed
> >me that I have a grapefruit sized cyst on my ovary!! I almost passed out
> >from shock! Of course my first question to the doctor was HOW??? I wasnt
> >supposed to have an ovary, I suffered through that last surgery so I
> >wouldnt have to do this again, the doctors PROMISED me! I broke down and
> >I think I had a nervous breakdown right there... the ER doctor wasnt
> >very sympathetic and told me "well because you have such a mess inside,
> >they must have missed part of your ovary, NO big deal, they can just go
> >back in and take it out... You have had 5 surgerys for adhesions,
> >cysts, and to fix the hernia caused by your #3 surgery, you are a pro
> >now, he he he" Grrrrrrrr... How insensitive can you get?? I know he was
> >trying to make light of the situation, but I was in NO mood for it. So
> >now, I am scared to death! The last surgery, I almost died, they couldnt
> >get the bleeding to stop, I have a 5 inch hole in my stomach from a
> >surgical hernia and they put 2 layers of mesh on it which in turn made a
> >blood clot form on top of it and I looked 9 mos pregnant, and it is
> >still not gone! The doctor said my body would eventually re-absorb the
> >blood clot...it hasnt happened as of yet. And now they tell me I have
> >to go through it all again??? Oh my gosh =*( My family is pushing me to
> >do it, they just want me to be well...But they dont understand that
> >mentally I feel like if I go in for another surgery (they seem to get
> >worse each and everytime I have a surgery) I feel like I wont wake up
> >when they put me to sleep, I feel like I dont have any fight left in me
> >to pull me through. I feel hopeless, completely and utterly hopeless.
> >Im sorry I have written so much, I didnt know what to say when I first
> >started writing and now I cant seem to stop! I guess I will end it
> >here...I just needed to vent, and I know that all of you will
> >understand. THANK YOU to whomever made this site!!
> >Anyone that wishes, feel free to email me if you want to talk, I am not
> >only good at talking but Im one heck of a good listener =)
> >
> >--
> >~Nikiti
> >
>