Discovering the Fellowship
From: Robin Medici (rcmedici@home.com)
Thu Feb 1 17:27:22 2001
Dear Members of this Board
I discovered this site just this week in a desperate attempt to find out
SOMETHING about adhesions. I figured I could not be the only one
suffering. Boy, was I right. I have spent the day reading the postings
to this board and am now both relieved not to be alone and still
frustrated that there is no "cure". My story is similar to everyone I
read - surgeries, endometriosis, more surgeries for complications with
the final surgery climaxing with the acknowledgement that adhesions were
now my final problem (no longer endometrosis since we did manage to get
rid of that with a full hysterectomy). I have been fortunate in that my
pain has been intermitten for the past two years and easy to overlooked
by myself. It has only been in the last three months that it has become
more and more constant and I had started on the same pilgrimage that
many of you have endured for years. I.e., the doctors who run dozens of
tests, everything is normal and we are left to "assume" the culprit is
adhesions. The final act being that all the doctors get a "deer in
headlights" look and mumble as they turn away.
Although I recognize that there may be no "cure" I do wish to pursue
alternative methods to at least relieve the pain and also find a
specialist to partner with should complications develop. Which brings
me to my question, "Can anyone tell me how to go about finding a
specialist in my area?" I live in the St. Louis region and would like
to find someone who knows more than the run-of-the-mill. Are there
certain questions I need to focus on? Is there a magic word that will
help me seperate the wheat from the shaft?
I apologize for my long winded posting and understand if no one has an
answer. Either way, I want to thank everyone for the sharing and
comfort offered to strangers. May Peace find all of us in some way.
--
Robin M.