From: jackie burgess (jackie@k9paws.fsnet.co.uk)
Tue Mar 13 12:06:26 2001

> > Hi everybody,
>6yrs ago > I went into hospital on a friday morn. was = told that i
>would only be in for > half a day, had my op. = removal of ovaries,
>that afternoon my hubby rang up > to see if he could = collect me to
>take me home, he was told there had been > some sort of complications,
>but not told what. > On the sat. junior dr came = round on ward round
>and said that i could go > home, I stated that I = had not passed
>urine, or opened my bowels AND SIMPLY > DID NOT FEEL = WELL ENOUGH TO
>GO HOME, I was absolutely desperate to go to > wee, = so they inserted
>a catheter(relief). so they kept me in hospital. On > = the sunday
>morn.i felt a little better but not right, on the mon. morn. at >
>6.30am they came to remove my catheter with the prospect = of going
>home that > day, well after that all hell broke loose I was = being
>violently sick, but it > was a horrible blacky/green in = colour, and
>the pain was excruciating, this > progressed for most of the = morn. I
>went to try to open bowels but i was > literally crawling on = my hands
>and knees, i thought i was going to > die(little did I know I = was,
>actually). After my husband kicked up a right > stink that the >consultant should be called he eventually arrived around > = 3.00ish
>and said oops it looks like i might have nicked your bowel and > >bladder, because at this point I was totally incontinent of urine. I >was > then rushed into theatre as an emergency at around 10.00pm and
>came out of > theatre around 2.00am with tubes in every orifice in my >body, in my neck up > my nose all over my body and to my horror and >yes it was horror a colostomy, > of course i was heavily sedated >on morphine. I was kept in hospital for > roughly 3 months so I = had
>no alternative but to cope with my new friend!!! > HA HA. But >everyone kept telling me how well i was coping, but they didnt > know >what was going on in my mind only i did, yes i'll admit i didnt = want
>to > carry on life as a 'Freak' but then i had to weigh up the >alternatives. I > KNOW I went through the tunnel to GOD. I could tell u
>= everybody that was > standing at my bedside mourning me, everything
>was white,the whole room was > white and very very bright, but = i
>wasnt frightened, it was so serene > I eventually had the colostomy >reversed in the dec. and its the worst > mistake i had to make. at >least i could do more things then than i can > now.They didnt repair >the whole in my bladder til the following february, > that was worse >than having a colostomy, you think u smell of urine all the > time, and
>if = and when i did go out i was wearing adult nappies two = pairs
>of > underwear just to try to remain dry, i did have a few mishaps and
>i just > burst out crying with the humiliation of WETTING myself. >
>I DID NOT find a colostomy hard to care for, as i = didnt have a
>choice, hey > this is what i'd been dealt so I had to = get on with
>it, It was the coping > mentally, what were people = thinking of me,
>could they smell 'the pooh' all > those kinds of = things.would my
>hubby want to make love to me with a > = colostomy? > Since then i
>have had 17 ops to try to sort all the problems out, but = my > inside
>is an absolute mess, and I wont ever be cured of pain. one of = the >
>worst things is trying to have a sex life, or opening my = bowels.
>either of > these things take me to my bed with so much pain, = and
>sometimes vomiting > straight after. as i said before i am now >registered disabled and have not > worked for 6 yrs since and = cannot
>do housework cooking very often, all the > things people take = for
>granted.BUT this is how i'm going to be for the rest > of = my life so
>i HAVE to learn to cope, not saying that i do all the = time, >
>sometimes i'm so depressed, but what other choice do i have, GOD = gave
>me a > second chance at life, i've a job to do, still,on this = earth,
>so i WILL do > it to the best of my abilities, disabled or = not. >
>I dont mean to be patronising, but, try not to look on what could
>happen, > all the time, YES u have to be realistic and be = aware of
>what could go > wrong, but you could get all het up worrying = about a
>stay as positive as u can. I was > just very unlucky, but = then i let
>the judicial system fight my case, and > happily i won. > So many
>things go wrong in this world, but = God put us on this earth as he >
>said "for just = one day, any more time u get after that one day, is a
>bonus.I know its hard = to stay strong at times, but IF i can cope then
>i = know others can > > Hope this answers some of your concerns, and >if i've helped then its been > my pleasure to share MY experience >with others > Hi everybody thought i would reply = to your email. I
>myself ended up with a colostomy 5yrs ago NOT due to a stretching of
>the colon but having my ovaries removed, the = surgeon accidently cut
>my bowel and bladder. I know the thought of a = colostomy frightens
>people, but in MY OWN experience I managed to cope with = it(well I had
>to ) it was coming to terms with what had happened and my = own opinion
>of what others must have been thinking about me. 7 = months later i had
>it reversed and although it was = excruciatingly painful at the time of
>the reversal, I didnt have half as many problems as i do now.
>Somtimes I regret making the decision to have my bowel re-sectioned >
>again,at least then I could live life fuller = than I can now.
>As so many people have already stated things CAN = go wrong unfortunately,
>but I had to make the best of = what I had.If it meant me having a
>better quality of life than I do now = then I would opt for another
>colostomy. I even asked my surgeon if he = would consider me having
>another one, needless to say his reply was = unless there is a clinical
>obstruction then no. I did actually suffer = from peritonitis and its
>not a very pleasant experience to go through, = I know I went through
>the tunnel to God, but fortunately my time was not = up.
>Please dont think i'm being negative, but people = must hear what its
>lik to end up having peritonitis or a colostomy.
>I guess I was just very = unfortunate
>hope this helps alittle regards
>jackie = B England

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