Re: I cant carry on like this anymore!!!!

From: Eileen Rivera (charlene@prtc.net)
Sun Apr 1 11:06:27 2001


Hi Karla,

Thanks for caring. I think so but don't know if it's in all cases. I also am in a lot of debts due to I had surgery on February but haven't been working since January and haven't receiving any income. All my savings are gone and I a divorcee with three children. Please let me know if you find information on patients rights for Puerto Rico. I am so interested in meeting these doctors from PA and New York. I need help to stop these adhesions from reforming again or at least control them but not to wrap my intestines or other organs again. Right now I'm in pain again and the doctors told me my adhesions are back. Take care friend and hope to hear from you.

Love,

Eileen

> ----- Original Message -----
From: Karla To: Multiple recipients of list ADHESIONS Sent: Sunday, April 01, 2001 9:23 AM Subject: Re: I cant carry on like this anymore!!!!

Eileen,

Forgive my ignorance, but doesn't Puerto Rico fall under the same laws as the U.S.? In the U.S. there are laws that protect us, the patient, and allow us to receive the proper pain medicaation. It is up to us to stand up to the doctors and let them know that we know what our rights are and we deserve the appropriate treatment. I have had to take copies of the patient's rights with me to my appointments on several occasions.....it always works. I will try to research patient's rights in Puerto Rico and see what I come up with.

Karla

> ----- Original Message -----
From: charlene To: Multiple recipients of list ADHESIONS Sent: Sunday, April 01, 2001 8:53 AM Subject: Fw: I cant carry on like this anymore!!!!

> ----- Original Message -----
From: Eileen Rivera To: adhesions@adhesions.org Sent: Tuesday, March 27, 2001 11:05 AM Subject: Re: I cant carry on like this anymore!!!!

Dear Jackie B,

Hi...I'm also with a lot of pain after my surgery almost 8 weeks ago and my adhesions are back ! I thought yesterday I wasn't going to make it because of my desperation. It even came to my mind taking my car and driving 120 mph and hitting a wall ! ........I tried placing ice bags on my abdominal area, heating pads...everything. It hurts so much that I couldn't hardly walk nor move. Even when I'm sleeping (if I manage to sleep a little) if I move the pain strikes me.

I know what you are going through, try to go to a doctor ASAP, I know where you live there is more hope and medication than were I live. God bless and hope you can find a doctor to help you soon. Keep in touch.

Eileen Puerto Rico

> ----- Original Message -----
From: jackie burgess To: Multiple recipients of list ADHESIONS Sent: Tuesday, March 27, 2001 7:34 AM Subject: I cant carry on like this anymore!!!!

Hi everybody,

I feel i cant carry on like this anymore, i'm constantly in bed for 20hrs or more per day, can only manage to eat sandwiches anything bigger comes back up. I even phoned my priest this morning, so he came round to visit me and i told him how i felt.(If i go to sleep and not wake up then, i'll no longer be in agony).

Dont think i am suicidal, as i'm not, I would NOT contemplate that.I just want some kind of relief from this nightmare situation.

I havent been out of the house for ten days, except for an emergency visit to gp, (BUT) I'm really SCARED of going back into hospital, because of the accident that left me like this. If I go to hospital, then i have to go back to the same one, the thought petrifies me, even now i still have nightmares and flashbacks. As you all know the only way they can diagnose adhesions properly is by 'keyhole' laparascopic surgery.It was this procedure that led to my bowel being punctured so I had to have a colostomy done, and, they punctured my bladder, ended up with suprapubic catheter(a tube that goes through abdomen to bladder and drains in to a leg bag, and a vaginal catheter,as suprapubic catheter couldn't cope on its own.. As you can tell i'm really depressed and dont know how much more pain and vomiting i can cope with, and the weight loss.

I hope u can try to understand the way i'm feeling, and why I am so SCARED of going back to the hospital.

Perhaps some of u have felt like this before?

Is there not more to life than living with ARD?

Regards Jackie B England (stickybits)


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