Re: - Lets explain Adhesions to the world!!!!!

From: Wally (wallamara@hotmail.com)
Sat Apr 7 22:35:30 2001


Hi Jackie, That is why we are putting together press kits, so that we can send them to media around the world! The idea of the elstic bands and the sponge balls is to help get the attention of the media people. Any ideas? I took onboard Sally's comments about people not being interested in details (yuk) BUT I believe we need to "grose them out" to make them sit up and pay attention to our problem.

If everyone keeps writing to people like Oprah & others, eventually someone will listen..........keep it up guys.....someone will listen to us eventually!

Cheers & hugs, Jo

At Sat, 7 Apr 2001, jackie burgess wrote: >
>Maybe, it's just an idea but what about if one of the WOMENS MAGAZINES could
>do some articles, with patients stories, doctors responses, any medical
>interpretations, ideas.
>
> THIS CONDITION HAS GOT TO BE MADE MORE WORLDLY recognized even to the
>medical proffession,
>
>ARD IS A DISABILITY -----NOT JUST IT'S IN OUR MINDS.
>
>just a thought , any ideas ???
>regards
>jackie B england

--
You will never never know.......if you don't give it a go :)

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