Re: THANK GOD I FOUND YOUR SITE

From: joanne Thorpe (artdesigner2@hotmail.com)
Tue May 1 19:50:41 2001


Dear Ginny, I am so happy that you found this web site and I hope that you don't do anything drastic before reading some back issues posted here. I had my bowels covered with adhesions and if I did any exercise at all I would have to be immobile the next day. I lived a nightmare! Not only did I have the adhesions but I had an entrapped nerve at the top of my vaginal wall that required 10 Methadone and 10 Neurontin per day to quiet. I went to Germany to see Dr. Korell in March of 2000 and he cured me of the adhesions and the nerve improved but did not go away. I thought that I was going to have to accept the pain until a pain doctor, here in California, injected it with Prednisone, which wore off leaving the pain at the level before Germany. So I went back 4 weeks ago. Dr. Korell was thrilled to find that only 5% of my adhesions had grown back from last year and I was thrilled when he managed to get the nerve out. I am still recouperating but am starting to get more strengh and can't wait to start exercising like crazy!! I fully recommend a trip to Germany. It is affordable too. Write me if you want more info. My heart goes out to you. With love, Joanne At Tue, 01 May 2001, GINNY wrote: >
>I have been searching the net for a year looking for pain support sites.
>I found several but it seems virtually everyone has pain related to back
>conditions or neuropathies. Until just now, accidentally clicking a
>hyper-link in an unrelated message I found a site that specializes in my
>problem.
>
>I am 45 and I have been through 13 major pelvic operations since 1980.
>The original one was an appendectomy that was nopt necessary, post op
>findings. I must have developed mild adhesions which caused moderate
>discomfort, but back in the 80's it was easier to get insurance
>companies to pay for major surgery than to foot the bill for a barrage
>of diagnostic tests, so every time I had abdominal pain I was admitted
>to the hospital and opened up from naval to pubic bone. I don't have to
>tell you that this created problems beyond the scope of understanding. I
>then developed a bowel obstruction from adhesive bands and had another
>operation. Finally, I went through an operation at a major university
>hospital performed by a surgeon that specializes in releasing adhesions.
>He thought it would be a 3 hour process. 10 hours later I was told that
>my abdominal cavity organs are displaced and that my bladder is so
>firmly embedded in my bowel that he could only free up 30% of the
>adhesions. He removed a portion of bowel that was pre necrotic and used
>a Baker tube to try and clear some of the banding around the colon but
>the results were limited to relief for less than 3 months. I now have
>been diagnosed with "Advanced Pelvic Adhesive disease with multiple
>neuropathies" (the 4 lb. mass of tissue and webbing is resting on the
>nerves into my thighs and down my legs)
>
>I was also told that further surgery for adhesion control only would be
>life threatening. My options are as follows:
>
>1. Exoneration surgery....remove bowel, bladder and colon and replace
>with bags and tubes and spend the rest of my life like this
>
>2. Pain Management
>I am in a PM program now for 6 years, on MS Contin and while it seems to
>control the bulk of the pain, I am uncomfortable about 60% of my day. If
>anyone can tell me of anything that may have come along in the way of
>treating my stage of adhesions in the last 8 years, please, please tell
>me. I cannot believe I may be on narcotics for the rest of my life, or
>that scooping me out like a Jack-O-Lantern is the only alternatives I
>have.
>
>Is there any place or any surgeon who has devised a successful
>treatment? I cannot believe they are actually subjecting healthy people
>to chemo for adhesions, but this is one thing that was mentioned to me.
>Is it true?
>
>I would give anything for anyone's feedback, and if you have no good
>news on the surgical side, your support and sharing of ideas with me
>would be forever cherished.
>
>I need to say one last thing....this is a God sent gift. I cannot
>believe there are actually other people with the same or similar
>conditions as mine and I am so lonely for someone to talk to, who can
>fully understand what this pain feels like.
>
>Thanks in advance to anyone who cares to answer.
>
>--
>Ginny
>
>--
>Ginny H.
>

--
Joanne Thorpe

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