RE CHERYL COLE
From: jackie burgess (jackie@k9paws.fsnet.co.uk)
Fri May 4 11:53:46 2001
Hi Cheryl,
thought i would write to let u know that I have tried a tens machine,
unfortunately it made the pains worse, so I stopped using it.
I am now on Neurontin also known as Gabapentin, I am on 300mg tablets = 2X
three times daily which makes the dosage 1800mg per day, PERSONALLY, I am
finding that they are affecting my speech very badly, I know what I want to
say but the words either wont come out or they are all the wrong way round,
much worse than a stutter or stammer, and also I am finding that this dosage
is not taking all the pain away, I have to see my pain consultant on the
15th may, and she may increase dose or wean me off them, I just dont know. I
am very embarrassed talking if I go out, My husband has explained to people
why my speech is affected in this way. But I got really upset yesterday, I
went to see my Dad, first time since last July, as he hasnt got time for me
and all he could do was criticise my speech, I tried to explain why it was
like it was, but I just hurt so much inside at what he had said, I thought
that if my own dad was doing this to me how many other people, if i go out
are going to do this to me, so it hasnt done my self esteem anygood, my
immediate family, and inlaws are really understanding, and if they know what
the word is or the sentence that I am trying to say then they will finish it
off for me. I am going to tell my pain consultant this, because I feel I
have enough to cope with the adhesion problem let alone a speaking problem.
I have been told that these drugs are predominantly used for people with
epilepsy, but they seem to have a good effect with managing pain, well not
yet for me.But this is just MY personal experience each person as you know
there body accepts or rejects medication all differently. I am aso on
Arithrotec,for pain, Amitryptiline, for pain, Morphine for pain, and the
only one that touches the pain is the morphine. so I dont know whats going
to happen.
If I can help in any other ???? dont hesitate to write
regards
Jackie Burgess
england