>>----- Original Message -----
>From: dawn <momofverymany@aol.com>
>To: Multiple recipients of list ADHESIONS <adhesions@mail.medispecialty.com>
>Sent: Friday, May 04, 2001 7:49 PM
>Subject: my tale of woe
>
Unfortunately My husband not only doesn't have a clue about ahesions he
doesn't even want to buy a clue from any available source.
I have written down various sites for him to look at in his spare time
like when he's looking for a "new and imporved marketing plan that is
going to make him millions"
It just feel like he doesn't care. I was told just this weekend that I
am selfish. Yes I am as selfish as someone in the desert searching for
water. He supposedly looked in "harvard medical dicitionary just last
month while he was in th epublic library (Ihave been in pain for
15months now) and it said that chronic pelvic pain is pshycological in
nature. hey everyone did you hear that its psychological, I know I will
have a lobotomy and i will no longer been in pain right? Sometimes that
man makes me ill! I will have to get his email address and maybe you
guys can et it through his head, I don't email my hubby i don't kknow
what it is off hand.
>> As you know I am new to the site.
>>
>> I do have the access to a pain management team. Stonybrook anethesia
>> Pain clinic. I was very hopful when I was sent there in Dec 2000. The
>> first words from the mouth of my primary md there was "Don't give up
>> hope" .However, I feel that since I was sent there that all efforts to
>> find the cause of my constant pain have been haulted. I have "only" had
>> an MRI, a Sonogram, a Cystoscopy, and a Sigmoidoscopy. noone has
>> actually looked at my "guts".
>>
>> Unfortunately for me I have "issues" that as time goes on and situations
>> occur only get worse. I have been under the care of a psychiatrist due
>> to the opinion of my 1st set of MDs that the pain was due to psych
>> issues. I have taken all of the pills that have been prescribed. The
>> only thing they managed to due was cause nausea, headaches, and a day I
>> cannot remember because of an interaction error.
>>
>> Anything that has been suggested, I have tried. If i was told that
>> hanging from my left nipple from the closeline in january would do it. I
>> would try it. I guess I am having a very difficult time as I do not
>> feel comfortable going to work taking narcotics, and quite frankly I
>> require alotof narcotics to do the job. 50mcg Duragesic patch and 4mg
>> Dilaudid q 4hrs to have adeqaute pain relief. And my work is my life.
>>
>> I have 6 kids that expect to be chaufferred here and there and they just
>> don't understand the fact that mom is legally loaded. I am not
>> comfortable doing it, so I forgo pain relief for peace of mind. My
>> darling hubby is less than supportive. and to say he tells me I am
>> making more of things than they are is a mild understatement. It should
>> also be know that he works the evening shift, leaving me with the bulk
>> of the child and house hold duties. I have asked him on more than one
>> occasions to please change shifts, and Im told that we can't afford to
>> have the decrease in pay. Evidently he doesn't realize that I have been
>> out of work for the past 7 weeks without a paycheck.
>>
>> I had been using a continuous epidural pump. carried my pump with me
>> everywhere I went that was wonderful. However, I kept developing site
>> infections at the insertion site. So I would go from being essentially
>> numb from the butt to navel to having the 100% pain back when it was
>> removed. That my friends is a bad trip.
>>
>> I still have hope that I have some adhesions around a nerve or my l
>> ovary that if released will bring some relief, I just need to find an MD
>> willing to open me up with a regional anesthesia and I should be on the
>> road to happy land.
>>
>> If anyone has a kind and compassionate MD near LOng Island Please let me
>> know. My hubby won't even go into Manhattan, it's too far. And I'm
>> hitting the opiates so I'm not driving these days.
>>