Wally wrote:
> Hello?????
>
> Is anyone actually listening? There seems to be quite a few STRONG
> opinions flying around this site. AGAIN emotions are inflamed and
> peoples feelings have been hurt by others comments....
>
> Isn't this a support group? Yes Helen, Trace did her homework and found
> a fantastic surgeon and is currently enjoying life and her family! Guess
> what else Helen, her surgeon used seprafilm, oh and it was a
> laperoscopic procedure!
>
> No one INCLUDING Trace has EVER suggested that everything works for
> everyone! She simply put a message on the board about her personal
> experience with this particular barrier....
>
> I have spoken at length with Trace about seprafilm, and I know how
> strongly she feels about it's success. Anyone out there who reads my
> message, DO NOT only listen to the opinions of those on this
> board.........TALK AT LENGTH TO YOUR SURGEON.......MAKE SURE THAT YOU
> ARE CONVINCED THAT THIS IS THE SURGEON FOR YOU, I am not shouting, just
> trying to emphasise my
> point :-)
>
> When I announced that I had chosen my surgeon and had a date for
> surgery, I received a number of private emails asking me to consider
> this and that.....I did, and was still happy with my choice.
>
> I am now just over 4 weeks post op, and EVERY surgeon and doctor who has
> spoken to me since my procedure knew of my desire for a laperoscopic
> operation. EVERY one of them has said to me, "you know Jo, YOU made the
> right choice! We would have had to open you up any way"
>
> I can certainly feel a difference, I have passed the post surgery pain
> stage I believe, and yes, I can feel new adhesions and I still have some
> pain. Many of you would also be aware that I also now have some other
> problems .....with my liver apparently. I will not find out anything
> else now until I see yet another specialist in June.
>
> For those who are still here, reading my post I chose NOT to have
> seprafilm, Trace & I talked about this too, I also talked to my surgeon
> about it. I seem to be the kind who reacts to things,......surgical
> dressings for example. I had a reaction to the mesh that was incerted
> in my abdomen to hold my bowel in.....my muscle wall is destroyed from
> seven surgeries in the one spot across my abdominal wall. I was nervous
> about this last surgery, and decided FOR MYSELF that I would not persue
> the use of seprafilm. It's all a gamble really anyway isn't? Only God
> really knows the outcome for any of us.
>
> Who knows...perhaps if I had insisted on using a barrier, my results may
> have been different. One of the specialists in Sydney said to me that
> its easy to use a "retroscope" (hindsight) and see what would be best,
> but since a retroscope doesn't exist yet, we will have to content
> ourselves with making individual, informed decisions. I agree!
>
> PLEASE don't discount someone's post, or comments on personal
> experiences.....every one of them is of the utmost importance to
> everyone who reads the messages on this site, and trying to make choices
> of their own.
>
> So to sum up Helen and to anyone still here! I agree with you, the
> choice of surgeon DOES make the difference between success and failure
> of surgery, but I also believe equal consideration to surgery style,
> tecnique, as well as medications, barriers etc etc also are overwhelming
> factors in the outcome too. Please, I respect your postings and your
> role on this site, your support and dedication is not in question,
> however I think that when you reply to a post, you should be aware of
> how it may be perceived by the original author, take their feelings and
> views into consideration.
>
> I haven't had much response to my posts lately, I have a core of people
> with whom I am in contact with and I thank them for their support and
> good wishes. It is a site that is growing daily, and if we all
> responded to every post....*giggle* we would sit at our computer ALL day
> every day just trying to keep up! BUT please, whether you agree with me
> or not I would love to hear from you.
>
> Cheers, love & hugs to all,
> Jo
>
> At Sat, 12 May 2001, Helen Dynda wrote:
> >
> >Your choice of surgeon can make the difference between the failure or
> >success of your surgery!!
> >
> >Trace chose the right surgeon; and she is doing well today. I hope that
> >Trace will share the name and location of her surgeon with others from
> >Australia.
> >
> >BE SURE to read the message I posted today on the topic:
> >
> >>>HOW TO CHOOSE YOUR SURGEON<<
> >
> >~ ~ ~ ~
> >
> >At Sat, 12 May 2001, Suze wrote:
> >>
> >>Dear sweet trace,
> >>I can see how this upset you as it did to me as I read it also, The fact
> >>is everyone is different and different things help us all, what about
> >>saying 7 reasons to have it??
> >>I had seprafilm in my last op as you said, and with my liver still
> >>playing up with pockets of fluid and been inflammed its hard to tell yet
> >>where I will end up. BUT my surgeon didnt give me any ideas it would
> >>cure me in fact he said 1/3rd it works great for 1/3rd get some relief
> >>and 1/3 might as well not have used it . BUT it sure was worth trying
> >>it and I would try again tommorrow if necessary. I was cut open for my
> >>surgery, and when you think about it trace wasn't and who is the one
> >>pain free now??? Its not me so go figure.
> >> If seprafilm is that bad why is any doctors using it?? it can work and
> >>help for some!! I know trace did a lot of work and research into finding
> >>her doctor seems to me like she made a damn good choice to.
> >>I to like gloria have found posting on this site hard at times as you
> >>often get ingored and I know of others that have felt the same, and it
> >>seems to me if you try to give your story and what worked for you you
> >>get slammed anyway.
> >>I wish you wouldnt leave trace cause I for one know your help,
> >>knowledge, and support has got me to where I am today and that is having
> >>found a surgeon (through you trace) and finally at least having some
> >>hope now to getting a life back.
> >>
> >>--
> >>Suze
> >>
> >>niko wrote:
> >>
> >>> My experience in Oz was totally different to this, obviously my facts
> >>> of real life are wrong. I have disconnected from this website, as
> >>> these sort of remarks upset me, when you try to help. Anyone can email
> >>> me privately at any time. Trace xo
> >>>
>> >>> ----- Original Message -----
> >>> From: Helen Dynda
> >>> To: Multiple recipients of list ADHESIONS
> >>> Sent: Saturday, 12 May 2001 1:09 AM
> >>> Subject: Seprafilm.....7 reasons NOT to use...and...and only
> >>> 1 reason that MAY help!!
> >>> BE WARY OF SURGEONS, WHO SAY THEY CAN APPLY SEPRAFILM
> >>> LAPAROSCOPICALLY!!! ||| Reasons NOT to have Seprafilm used
> >>> as an adhesion barrier: 1.) Seprafilm can NOT be applied
> >>> laparoscopically! 2.) Seprafilm has NOT been approved by the
> >>> FDA to be applied laparoscopically! 3.) Seprafilm is brittle
> >>> ( somewhat like waxed paper ) and very difficult for the
> >>> surgeon to use! 4.) Any moisture on Seprafilm makes it
> >>> sticky -- causing it to stick to surgeon's gloves -- which
> >>> also makes it very difficult to apply! 5.) For all of the
> >>> above reasons, the BEST surgeons have decided to NOT use an
> >>> adhesion barrier. 6.) Any infection or inflammation within
> >>> the abdominal/pelvic cavity CAN cause MORE adhesions to
> >>> develop! 7.) The way each person's body accepts a foreign
> >>> substance or adhesion barrier IS DIFFERENT!! Some people
> >>> are ALLERGIC to adhesion barriers, like Seprafilm, Interceed
> >>> and the NEW Intergel gel adhesion barrier. I know of one
> >>> person, who is allergic to ALL three adhesion
> >>> barriers!!! ||| ONLY ONE REASON TO USE SEPRAFILM: 1.) The
> >>> FDA has approved Seprafilm for LAPAROTOMY surgery
> >>> ONLY!!!!!!! THERE ARE NO GUARANTEES THAT SEPRAFILM WILL
> >>> PREVENT ADHESIONS FROM FORMING ( de nova adhesions) OR
> >>> RE-FORMING!!!!!!!
> >>>
>
> --
> You will never never know.......if you don't give it a go :)
>