Sally Grigg wrote:
> Dear Suze, Please don't feel ignored, or like nobody cares, we do
> care, its just that there is so little time each day to sit up and
> functon and so much time when I lay in bed in agony beyond belief,
> that I can't keep up with everything. I wrote Trace separately, and I
> was wrong, I had seprafilm in my last operation which was supposed to
> be laprascopic, but my bladder was cut so they had to do a full
> incision to repair and that's when they used the seprafilm, which
> thinking back I had heard of and asked for before the operation.
> Unfortunately, it didn't help me at all, unless it could hurt worse
> than this, and that thought terrifies me. Anyway, this board is just
> free form, and some people go away because no one answers. I try to
> answer, but its overwhelming. But I feel like I've gotten to know you
> and Trace and the other " Aussie " girls and I think of you and get a
> kick out of talking to you so far away. I can understand Trace not
> wanting to particpate, when she feels slighted and hurt. And I told
> her if she were pain free, as she seems to be, there's no reason for
> more stress, but please try to keep in touch. We need all points of
> view. And I for one, love to get your messsages. Love and blessings
> upon you, Sally Grigg
>
>> Dear sweet trace,
>> I can see how this upset you as it did to me as I read it also, The
>> fact is everyone is different and different things help us all, what
>> about saying 7 reasons to have it??
>> I had seprafilm in my last op as you said, and with my liver still
>> playing up with pockets of fluid and been inflammed its hard to tell
>> yet where I will end up. BUT my surgeon didnt give me any ideas it
>> would cure me in fact he said 1/3rd it works great for 1/3rd get
>> some relief and 1/3 might as well not have used it . BUT it sure
>> was worth trying it and I would try again tommorrow if necessary.
>> I was cut open for my surgery, and when you think about it trace
>> wasn't and who is the one pain free now??? Its not me so go figure.
>> If seprafilm is that bad why is any doctors using it?? it can work
>> and help for some!! I know trace did a lot of work and research into
>> finding her doctor seems to me like she made a damn good choice to.
>> I to like gloria have found posting on this site hard at times as
>> you often get ingored and I know of others that have felt the same,
>> and it seems to me if you try to give your story and what worked for
>> you you get slammed anyway.
>> I wish you wouldnt leave trace cause I for one know your help,
>> knowledge, and support has got me to where I am today and that is
>> having found a surgeon (through you trace) and finally at least
>> having some hope now to getting a life back.
>>
>> Suze
>>
>> niko wrote:
>>
>> > My experience in Oz was totally different to this, obviously my
>> > facts of real life are wrong. I have disconnected from this
>> > website, as these sort of remarks upset me, when you try to help.
>> > Anyone can email me privately at any time.Trace xo
>> >
>>> > ----- Original Message -----
>> > From:Helen Dynda
>> > To: Multiple recipients of list ADHESIONS
>> > Sent: Saturday, 12 May 2001 1:09 AM
>> > Subject: Seprafilm.....7 reasons NOT to use...and...and
>> > only 1 reason that MAY help!!
>> > BE WARY OF SURGEONS, WHO SAY THEY CAN APPLY SEPRAFILM
>> > LAPAROSCOPICALLY!!! ||| Reasons NOT to have Seprafilm
>> > used as an adhesion barrier:1.) Seprafilm can NOT be
>> > applied laparoscopically!2.) Seprafilm has NOT been
>> > approved by the FDA to be applied laparoscopically! 3.)
>> > Seprafilm is brittle ( somewhat like waxed paper ) and
>> > very difficult for the surgeon to use! 4.) Any moisture
>> > on Seprafilm makes it sticky -- causing it to stick to
>> > surgeon's gloves -- which also makes it very difficult to
>> > apply! 5.) For all of the above reasons, the BEST
>> > surgeons have decided to NOT use an adhesion barrier. 6.)
>> > Any infection or inflammation within the abdominal/pelvic
>> > cavity CAN cause MORE adhesions to develop! 7.) The way
>> > each person's body accepts a foreign substance or
>> > adhesion barrier IS DIFFERENT!! Some people are ALLERGIC
>> > to adhesion barriers, like Seprafilm, Interceed and the
>> > NEW Intergel gel adhesion barrier. I know of one person,
>> > who is allergic to ALL three adhesion barriers!!! |||
>> > ONLY ONE REASON TO USE SEPRAFILM:1.) The FDA has approved
>> > Seprafilm for LAPAROTOMY surgery ONLY!!!!!!! THERE ARE
>> > NO GUARANTEES THAT SEPRAFILM WILL PREVENT ADHESIONS FROM
>> > FORMING ( de nova adhesions) OR RE-FORMING!!!!!!!
>> >