You said words I didn't have the nerve to say, and I thank you. Many of us pour our hearts out into this site...some of us are unable to sit at the computer without hurting worse, but we do; some of us are in no shape to respond to anyone at all because we are so sick, and some of us have had successful surgeries that have left us with no other reason to stay here other than we love and care so much for our fellow sufferers, that we want to be here to offer our support and our hope.
Colette last posted in March, back then she offered support and received support....we loved her and accepted her as part of the family, as we still do. But I couldn't help but feel so sad and dejected after Colette's reading message....I felt hurt by her words, and others did too.
We all have the responsibility for ourselves, as well as to make this site what we want it to be....I'm a big believer in that!
Anyway Richard, I want to thank you for saying what I couldn't.
Love,
Janet
>----- Original Message -----
From: "Richard Hagen" <rsh4799@att.net>
To: "Multiple recipients of list ADHESIONS"
<adhesions@mail.medispecialty.com>
Sent: Saturday, May 19, 2001 8:16 PM
Subject: Re: Dissapointed with this site leaving for good!!!
> To Colette,
>
> I used to respond to many of the messages. I don't consider myself in a
> "click" just because I can't respond. I have 650 messages to go through
> because I haven't had time in the last 4 weeks to spend quality time
reading
> them. Stop whining about it and be grateful for what you have, colette. My
> wife right now is withering in pain. I worked the night shift last week, I
> have mountains of laundry, I need to fix things, clean, make meals and pay
> bills and work overtime, two kids that need at least one parent to do
things
> with them, and be a caretaker to my wife that constantly battles with
bowel
> and adhesion problems. Stop the nonsense of oh-poor-me and move over and
> help, or just read. There ARE angels at this site. Don't irritate them.
>
> Richard
>
> > At Thu, 17 May 2001, Colette wrote:
> > >
> > >It seems to me if you don't fit into everyones little click then no one
> > >will talk to you here. I have just as many problems as the rest of
you.
> > >I'm getting very depressed that no one listens anymore! I'm so sorry i
> > >don't fit into the click! But no of you are any better than I. I used
> > >to like this site but the last couple of postings no one cared . I
hope
> > >you all find the answeres your looking for. Best of luck to you!! I
> > >think i will try to start my own site on adhesions.
> >
> > Colette:
> >
> > I wish you would reconsider leaving the ARD site, especially since you
> > feel we are ignoring you and your questions. I think you need to give
> > us all time!
> > Hey, listen....when I first found this site, I thought I had died and
> > gone to heaven! I finally had a bunch of people just like me who were
> > trying to cope with pain and traumatic health conditions and keep
> > positive attitudes.
> > There are people like Helen and Bev and Millie and Janet and a bunch of
> > others who have actually made this site their mission. If you need
> > anything, these names are the best people to direct your letters to,
> > when you come onto the board.
> > They are such dear ladies!
> > When I found this site a few months ago, I wrote several letters and got
> > few responses.
> > So I read literally every single thing posted to make myself even more
> > familiar, and guess what? I got answers at last!
> > Remember....there are so many new people who log on daily, all wanting
> > to tell their stories and feel like part of this great group and
> > sometimes the chit chat between the long term members can appear to
> > overwhelm the newer, more timid inquiries. (you can actually feel
> > better just reading the funny stuff these people say to each other!)
> > I have met so many fantastick people on this site, and even better, have
> > been able to comfort and support dozens of others who hurt or feel
> > despair.
> > I am now the Pennsylvania contact for IAS and am on a mission to get the
> > pain management doctors in Pennsylvania educated on ARD and accepting
> > new patients!
> >
> > Colette, you sound like your pain and anguish has made you feel lousy
> > all over, and I can hear the sadness in your letter. But please, don't
> > judge us until you have a chance to know us. Remember, as much as you
> > hurt and feel discouraged, we do as well. We're here FOR EACH OTHER.
> >
> > If you are interested in being here for US, you'll get more than enough
> > support from everyone.
> >
> > Hang in there sweetie. If you'd like to write to me off the board,
> > please write to me at gingin99@home.com. I'll answer you immediately.
> >
> > Lots of love and luck...
> > hang in there
> >
> > Ginny Halpern
> >
>