karen wrote:
> Hi all,
>
> Three weeks ago I had surgery not knowing what to expect. I think I
> posted the outcome and it was confusing to some as it was to me. I have
> a bit more info and thought I would share it.
>
> Last year I was diagnosed with adhesions and endo during a lap.
> Continued to have pain for over a year dispite Lupron and being thrown
> all over to different doc's.
>
> During this lap my new gyn found that my left broad ligament
> (uterosacral ligament) was significantly shorter than the right. On the
> pictures the right looked to be 3-4 inches and the left only about 1
> inch, almost not even there! There was endo on this ligament and behind.
> The dr. thinks this is what caused it to shrink up causing adhesions on
> the ligament as well. He says he has never seen anything like it. What
> he did to try to alleviate the problem is he cut right through the
> ligament and the nerve that runs through it, thus freeing it. He says
> that this in fact is what could have been causing my back, groin, leg,
> labia, abdomen and hip pain for so long. Because the uterus was not
> being allowing to "float freely". Periods were very painful too.
>
> For the first week or so all I had was the surgical pain. I felt pretty
> good. Every once and a while I feel this exact pain again. I am very
> scared to do any activity because if I do start to hurt again, I will
> not be able to say I feel better after my surgery. I so want to say I
> feel better, cut and dry.
>
> I will see him in about 6 more weeks to follow up and see what is going
> on, how I feel etc. Apparently it might take a little while to feel the
> full effects? Don't know why if he cut through the ligament and the
> nerve. From what I can gather this procedure is called the LUNA
> procedere, laparoscopin uterosacral nerve ablation. Has anyone had it
> or heard of it??
>
> Like I said, the doctor has never seen anything like this "shrunken
> ligament". Says if this works he is going to write it up as a
> report...gee thanks.
>
> Any info or input would be greatly appreciated. I know some and not all
> of you have endo as well. I have also been to the endo forum and
> haven't gotten any responses there.
>
> Sorry this is so long....
>
> Take care all,
> Karen H.
>