Re: CAT Scans - Millie

From: Ginny Halpern (gingin99@home.com)
Mon Jun 11 16:14:14 2001


Dear Millie;

Just want to tell you this on the board as well as via personal e-mail, in case anyone else has the same concerns:

I had 4 solid days of in patient CT scans, X-rays, Barium studies, contrast studies and more poking and prodding, ultra sounds and even a psych. evaluation than you can shake a stick at. ALL WERE NORMAL. (including the Psych. consult!) As you know, my daughter is an OB/GYN surgeon and she scrubbed in on the laparotomy that was finally done, after all tests were negative and I was writhing in pain. Even the surgeon who agreed to "have a look" believed he would find minimal adhesions and nothing else.

I had 8 hrs of intense surgery. The comment made by all 3 attending surgeons was :My God, this is the most horrific bellyful of adhesions I have seen in all my years. Every organ is displaced by several milimeters. Her bladder is embedded in the transcending colon. blahblahblah. NO WONDER SHE HURTS!"

There isn't a non invasive study in the world that will show adhesions and the havoc they create inside us. Your colonoscopies and scans are normal for cancerous lesions and tumors, but that doesn't negate the fact that you have pain and that you have adhesions causing that pain.

As I said to you before, it's a tough and tricky descision to have to make regarding more surgery, and weighing your pain versus the chances of developing more adhesions is something only you can do. That surgery was 6 yrs ago. Today I have more pain than I did back then, but I am glad I had the operation. At least it made me feel like I was NOT CRAZY!

Please don't think that clean scans and x-rays mean that you don't have real pain. It simply means you don't have anything that can be visualized on a screen.

Love to you

ginny

At Mon, 11 Jun 2001, Millie wrote: >
>Dear Rose,
>The report said something like... "scope to cecum.. poor prep esp. of cecum
>& rt. colon. Rest of prep fairly good. no lesions visualized. Small
>internal hemorrhoid."
>Under discharge plans, "Bowel regimen. Repeat test 5 years.
>I don't know what to do.
>M.
>

>>>----- Original Message -----
>From: "Rose Lunn" <rose.lunn@eds.com>
>To: "Multiple recipients of list ADHESIONS"
><adhesions@mail.medispecialty.com>
>Sent: Monday, June 11, 2001 3:32 PM
>Subject: Re: CAT Scans - Millie
>
>> Millie,
>>
>> Is that all she said about your colonoscopy? (She said she had no
>> trouble getting scope all the way through.) No mention of what she
>> found? Can you request a copy of her report? The doctor that did mine
>> wasn't the world's best communicator, but he did send me a copy of his
>> report when I asked for it.
>>
>> I know it is hard to be proactive when you hurt and are soooo tired. Is
>> there someone who can intervene for you?
>>
>> Love, hugs and strength to you,
>>
>> kcmo rose
>>


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