Re: anything new

From: stevie (selwood@netzero.net)
Mon Jun 18 14:40:18 2001


Karla,I too am angry at the doctor who did this as well as those who followed that told me to go home and put it behind me, wouldnt that be a great idea if they would take my pain I would gladly put it behind me.I have a friend who lost her bladder to interstitial cystitis she has been through so much pain and so many surgeries i cant imagine the torment you are going through that way but there are so many of us with this adhesion problem that i never knew how many until i got on the net. there has to be an answer some day some where some doctor will come up with an answer for us all thats all i can hope for. Hang in there,it sounds like you have been I will say a prayer for you. HUGZ STEVIE

At Sun, 17 Jun 2001, Karla wrote: >
>Stevie,
>
>I originally had tremendous pain in the vaginal vault. Then I had my
>hysterectomy and the pain went away...totally. I have never had that pain
>again. But, I also have had severe bladder pains as well as bladder
>problems. At this time I have no bladder and severe medical problems thanks
>to doctor error and their lack of knowledge regarding adhesions. One way or
>the other I will probably die. I am only 44 years old and I am angry!
>But, I am not angry at God, but with the doctors that made the mistakes. My
>faith in God is what gets me thru all the pain and anger.
>
>God Bless you.
>
>--
>Karla
>

>>>----- Original Message -----
>From: "stevie" <selwood@netzero.net>
>To: "Multiple recipients of list ADHESIONS"
><adhesions@mail.medispecialty.com>
>Sent: Sunday, June 17, 2001 4:20 PM
>Subject: Re: anything new
>
>> At Sun, 17 Jun 2001, joanne Thorpe wrote:
>> >
>> >Hi Stevie,
>> >II am so sorry that your pain is back. It is so frustrating to live
>> >with adhesions because we cannot see or touch them and the only way to
>> >do so is through a lap. But, laps cause more adhesions so you must be
>> >very careful about who does your lap. I am cured now after 6 surgeries
>> >for massive adhesions and a mass of nerves that were sruch in my vaginal
>> >wall. I never gave up and knew that I would be pain free. I got very
>> >close to God and listened for signs from Him about what I should do. I
>> >pray that your pain gets better and it is not those terrible adhesions
>>
>> >coming back. With love, Joanne
>>
>> Thankyou Joanne for replying, i was beginning to think I was at the
>> wrong web site. your reply brought me to tears.It is horroble what
>> happens to alot of women in my case the hysterectomy wasnt even needed.
>> I had cysts on my ovaries found thru ultrasound but were gone when he
>> opened me up, but since I was 44 at the time he figured i didnt need mt
>> organs any more,and have lost 4 years of my life so far. it sounds like
>> you have been thru hell also was it due to a hysterectomy if I could
>> ask.thank you again for your information. was the last surgery you had
>> done with a scope? i have always felt like nerves have been involved
>> because the pain is in the bladder and vaginal vault. i too have tried
>> to listen to god but i cant get beyond the anger. thanks again STEVIE
>>
>> >At Fri, 15 Jun 2001, stevie wrote:
>> >>
>> >>I have'nt been to the site for some time. I had a hysterectomy 4 years
>> >>ago then a laparoscopy 6 months later to try to fix bladder pelvic pain
>> >>that started after the hysterectomy. that did'nt work ,and through the
>> >>4 years I have had, like I am sure everyone here has had, to many test
>> >>and procedures to count any more, including 3 years of physical
>> >>therapy,that was a complete joke.I am wondering if any one else with
>> >>adhesions experiences periods like a month or more pain free? then bam
>> >>its back and worse. the last doctor I went to last week wants to do
>> >>another laparoscopy which doesnt thrill me at all but at this point I
>> >>need relief if there is such a thing. I am wondering has there been
>> >>anything new in the way of prevention after lysis or anything new in
>> >>treatments? I would appreciate anything anyone could clue me in on.
>> >>thanks so much Stevie.
>> >
>> >--
>> >Joanne
>> >
>>


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