At Mon, 18 Jun 2001, Karla wrote:
>
>Stevie,
>
>I wouldn't be surprised if your friend's problems weren't due to something
>other than interstitial cystitis.....like adhesions. I was told that I had
>interstitial cystitis as well, but I have since found out that I had
>adhesions encasing my bladder and the pathology report was negative for
>cystititis. Initially they did a bladder augmentation...then a repeat
>augmentation where they made an entirely new bladder from bowel. When I
>developed a fistula from the bowel to the bladder they had to remove my
>bladder since they could not pinpoint the fistula. But if they had just
>dealt with the adhesions to begin with I wouldn't be in this position.
>
>Love,
>Karla
>
>>>----- Original Message -----
>From: "stevie" <selwood@netzero.net>
>To: "Multiple recipients of list ADHESIONS"
><adhesions@mail.medispecialty.com>
>Sent: Monday, June 18, 2001 2:40 PM
>Subject: Re: anything new
>
>> Karla,I too am angry at the doctor who did this as well as those who
>> followed that told me to go home and put it behind me, wouldnt that be a
>> great idea if they would take my pain I would gladly put it behind me.I
>> have a friend who lost her bladder to interstitial cystitis she has been
>> through so much pain and so many surgeries i cant imagine the torment
>> you are going through that way but there are so many of us with this
>> adhesion problem that i never knew how many until i got on the net.
>> there has to be an answer some day some where some doctor will come up
>> with an answer for us all thats all i can hope for. Hang in there,it
>> sounds like you have been I will say a prayer for you. HUGZ STEVIE
>>
>> At Sun, 17 Jun 2001, Karla wrote:
>> >
>> >Stevie,
>> >
>> >I originally had tremendous pain in the vaginal vault. Then I had my
>> >hysterectomy and the pain went away...totally. I have never had that
>pain
>> >again. But, I also have had severe bladder pains as well as bladder
>> >problems. At this time I have no bladder and severe medical problems
>thanks
>> >to doctor error and their lack of knowledge regarding adhesions. One way
>or
>> >the other I will probably die. I am only 44 years old and I am angry!
>> >But, I am not angry at God, but with the doctors that made the mistakes.
>My
>> >faith in God is what gets me thru all the pain and anger.
>> >
>> >God Bless you.
>> >
>> >--
>> >Karla
>> >
>
>>>> >>----- Original Message -----
>> >From: "stevie" <selwood@netzero.net>
>> >To: "Multiple recipients of list ADHESIONS"
>> ><adhesions@mail.medispecialty.com>
>> >Sent: Sunday, June 17, 2001 4:20 PM
>> >Subject: Re: anything new
>> >
>> >> At Sun, 17 Jun 2001, joanne Thorpe wrote:
>> >> >
>> >> >Hi Stevie,
>> >> >II am so sorry that your pain is back. It is so frustrating to live
>> >> >with adhesions because we cannot see or touch them and the only way to
>> >> >do so is through a lap. But, laps cause more adhesions so you must be
>> >> >very careful about who does your lap. I am cured now after 6
>surgeries
>> >> >for massive adhesions and a mass of nerves that were sruch in my
>vaginal
>> >> >wall. I never gave up and knew that I would be pain free. I got very
>> >> >close to God and listened for signs from Him about what I should do.
>I
>> >> >pray that your pain gets better and it is not those terrible adhesions
>> >>
>> >> >coming back. With love, Joanne
>> >>
>> >> Thankyou Joanne for replying, i was beginning to think I was at the
>> >> wrong web site. your reply brought me to tears.It is horroble what
>> >> happens to alot of women in my case the hysterectomy wasnt even needed.
>> >> I had cysts on my ovaries found thru ultrasound but were gone when he
>> >> opened me up, but since I was 44 at the time he figured i didnt need mt
>> >> organs any more,and have lost 4 years of my life so far. it sounds
>like
>> >> you have been thru hell also was it due to a hysterectomy if I could
>> >> ask.thank you again for your information. was the last surgery you had
>> >> done with a scope? i have always felt like nerves have been involved
>> >> because the pain is in the bladder and vaginal vault. i too have tried
>> >> to listen to god but i cant get beyond the anger. thanks again STEVIE
>> >>
>> >> >At Fri, 15 Jun 2001, stevie wrote:
>> >> >>
>> >> >>I have'nt been to the site for some time. I had a hysterectomy 4
>years
>> >> >>ago then a laparoscopy 6 months later to try to fix bladder pelvic
>pain
>> >> >>that started after the hysterectomy. that did'nt work ,and through
>the
>> >> >>4 years I have had, like I am sure everyone here has had, to many
>test
>> >> >>and procedures to count any more, including 3 years of physical
>> >> >>therapy,that was a complete joke.I am wondering if any one else with
>> >> >>adhesions experiences periods like a month or more pain free? then
>bam
>> >> >>its back and worse. the last doctor I went to last week wants to do
>> >> >>another laparoscopy which doesnt thrill me at all but at this point I
>> >> >>need relief if there is such a thing. I am wondering has there been
>> >> >>anything new in the way of prevention after lysis or anything new in
>> >> >>treatments? I would appreciate anything anyone could clue me in on.
>> >> >>thanks so much Stevie.
>> >> >
>> >> >--
>> >> >Joanne
>> >> >
>> >>
>>