The only words that I can offer you is be extremely cautious with what your willing to put yourself through, and my guess is you already have! My only other one would be to lean on everyone in here, especially me as to maybe someone knowing something that has not been done yet, or a medication, or anything. I will always be available to talk to and will now hold a special place because we have so much in common! My prayers and every positive thought I can think of will send your way in hopes that you will be the 'miracle' person that recieves a 'cure' for this! Your friend, Kris
> -----Original Message-----
> From: Karla [SMTP:ifirgit@new.rr.com]
> Sent: Thursday, June 21, 2001 9:01 AM
> To: Multiple recipients of list ADHESIONS
> Subject: Re: Welcome Kris C.
>
> Kris,
>
> Did you happen to read my story on the quilt? It sounds like we are
> virtually walking down the same road except you have had the ileostomies
> where I have only had the urostomy.
>
> Due to the permanence of the urostomy I have an automatic weak spot in my
> abdominal wall....therefore my abdomen constantly herniates. In actuality
> I
> have no rectus muscle left and therefore no abdominal wall. Everything
> they
> have tried to prevent the hernias has failed. They have even taken the
> muscle tissue out of both of my legs to reinforce the abdominal
> wall...only
> for me to end up with more hernias less than six months later.
>
> I am now scheduled to have skin expanders placed in my upper abdomen in
> late
> July. They will work over six weeks to tighten them and once in place
> they
> will do a second surgery to put them in the lower abdomen and do a new
> urinary diversion. Because the adhesions are now kinking off my ureters I
> have had multiple episodes of kidney shutdown. My doctors do not believe
> that I will survive this next surgery to place the expanders...I would
> think
> that the odds of my surviving two procedures is even less. But, I have
> been
> told that the kidney infections that I am now having one after the other
> are
> going to kill me. I have a very huge decision to make ahead of me. I
> have
> been leaning towards not having this surgery....but I just don't know. I
> want all of this to be over with.
>
> Karla
>> ----- Original Message -----
> From: "Cassell, Kris C" <tcc21922@GlaxoWellcome.com>
> To: "Multiple recipients of list ADHESIONS"
> <adhesions@mail.medispecialty.com>
> Sent: Thursday, June 21, 2001 7:11 AM
> Subject: RE: Welcome Kris C.
>
> > Karla:
> > My story is on the quilt and it makes me feel good that you would want
> to
> > read it. I have had 3 c-sections- partial hysterectomy-then a total
> > hysterectomy, removal of my spleen, appendix, large intestine, most of
> my
> > small intestine, multiple obstructions, two illeostomy's, two illeostomy
> > take downs, another bowel resection, multiple lycing of adheasions,
> multiple
> > surgical hernia's and the list goes on and on, literally. The ironic
> part
> > is that now they are doing surgeries to repair the damage that the other
> > surgeries have done. The only time they will surgically touch me now,
> is
> > when the pain becomes unbearable ( as it is now) or it is life
> threatening.
> > My surgeon said that each and every available place inside of me, the
> > adheasions have attached themselves too. During one lycing operation,
> it
> > took him every bit of 12 hours to just do 3/4 of them and then since the
> > rest had the appearence of not being attached to anything major, they
> > decided that the smartest thing would be to leave them alone. Anyway,
> it
> is
> > my hopes that I just make it through the work day, so wish me luck!
> > Kris Nester
> >
> > > -----Original Message-----
> > > From: Karla [SMTP:ifirgit@new.rr.com]
> > > Sent: Wednesday, June 20, 2001 4:22 PM
> > > To: Multiple recipients of list ADHESIONS
> > > Subject: Re: Welcome Kris C.
> > >
> > > Kris,
> > >
> > > When you get a chance please put your story on the adhesions quilt. I
> > > would
> > > love to read it. I am right there with you as far as the number of
> > > surgeries. I have had 26 since 1991 and more than 40 total. What
> type
> of
> > > complications have you had and why do you need more surgery?
> > >
> > > Karla N.
> > >
>> > > ----- Original Message -----
> > > From: "Janet Karam" <jkaram4@home.com>
> > > To: "Multiple recipients of list ADHESIONS"
> > > <adhesions@mail.medispecialty.com>
> > > Sent: Wednesday, June 20, 2001 2:46 PM
> > > Subject: Welcome Kris C.
> > >
> > > > Dear Kris,
> > > >
> > > > Welcome, welcome!!! I feel like we heve an insider in with our group
> > > > now...can't wait for you to report to us about the new oral
> medication
> > > that
> > > > disolves adhesions in 10 days or less!...oh, how I only wish it were
> > > true
> > > > that a drug like that was in the 'pipeline'!
> > > >
> > > > You said you are planning your 43rd surgery, I am amazed that you
> have
> > > > endured so many. When is this surgery scheduled...I will be sure to
> send
> > > you
> > > > extra hugs and love that day!
> > > >
> > > > Love,
> > > >
> > > > Janet
>> > > > ----- Original Message -----
> > > > From: "Cassell, Kris C" <tcc21922@GlaxoWellcome.com>
> > > > To: "Multiple recipients of list ADHESIONS"
> > > > <adhesions@mail.medispecialty.com>
> > > > Sent: Tuesday, June 19, 2001 5:38 AM
> > > > Subject: RE: Hello everyone
> > > >
> > > > > All:
> > > > > Good morning to everyone! I am new to this website but am
> EXTREMELY
> > > > > thankful that you are here! It is a satisfying feeling to know
> that
> I
> > > am
> > > > > not the only one that suffers! I am 42 years old and ironically
> to
> > > date
> > > > > have had 42 major abdominal surgeries and facing another within
> the
> > > next
> > > > few
> > > > > weeks. I work for a the worlds largest pharmaceutical company and
> I
> > > can
> > > > > shed light on the fact that there are some new medicines in what
> they
> > > > refer
> > > > > to as "the pipeline" for pain relief. The pipeline simply means
> that
> > > it
> > > > > will soon be undergoing human testing and then will be marketed.
> > > There
> > > > are
> > > > > so many people that do not understand this illness or what we have
> to
> > > deal
> > > > > with daily, so, I am in the process of writing a book about this
> > > subject,
> > > > > strictly from a personal point and would like to extend the offer
> to
> > > > anyone
> > > > > dealing with this the opportunity to submit any stories, poems
> etc.
> I
> > > > have
> > > > > a publisher that has expressed interest so hopefully the outcome
> of
> > > this
> > > > > will be to shed alot of light on this illness and bring it out in
> the
> > > open
> > > > > so that more research is performed. I have read alot of the
> emails
> > > passed
> > > > > back and forth in this group and I already feel like I have found
> a
> > > > > wonderfully, understanding home. I look forward to hearing from
> any
> > > and
> > > > all
> > > > > of you!
> > > > > Kind regards,
> > > > > Kris Nester
> > > > > > -----Original Message-----
> > > > > > From: Hchalm@aol.com [SMTP:Hchalm@aol.com]
> > > > > > Sent: Monday, June 18, 2001 11:10 PM
> > > > > > To: Multiple recipients of list ADHESIONS
> > > > > > Subject: Re: Hello everyone
> > > > > >
> > > > > > Dear Jim:
> > > > > >
> > > > > > Thanks for stopping in and letting us know how you are doing.
> So
> > > good
> > > > to
> > > > > > hear that there are successes out there. Keep in touch.
> > > > > >
> > > > > > In Friendship,
> > > > > >
> > > > > > Helen Chalmers
> > > > >
> > > > > to the unsubscribe form at
> > > http://www.adhesions.org/forums/listcmds.htm
> > > > >
> > > >
> > > > to the unsubscribe form at
> http://www.adhesions.org/forums/listcmds.htm
> > >
> > > to the unsubscribe form at
> http://www.adhesions.org/forums/listcmds.htm
> >
>