kaceescott@hotmail.com wrote:
> At Sun, 21 Jan 2001, Richard Hagen wrote:Hi my name is Kacee, and I
> would like to say that your pain is my pain. I have been in the same
> pain for 10 and a half years. I have endometriosis so bad I was told,
> it is so scarey looking at it looks like a big spider decided to live in
> my left ovary area and my bowels. The tears flow so often it's like
> instant rain. The sad part about your pain and mine, is eating is so
> scarey that all i eat is watermelon, because it is water based fruit. I
> was just told that the doctor could not see certain parts in my lower
> body that were suppose to be their. So i took a MRI and that was scarey
> and the results were good, but the endometriosis had pushed my bowels so
> far down, it is like being in bumper to bumper traffic every day. I
> have not had a Hysterectomy and I am 34 years old with 3 children. I
> have a period every two weeks and no amount of pain pills work. I am a
> walking endo, cystmatic hard bowel, 2period having enemic bomb waiting
> to explode. As confused as it sound that is how my body feels
> constantly 24hrs a day. I have not told the half of the "Horror" story
> either. I have a cyst that is bigger than a gof ball on my right side
> and it is not shrinking either. My doctor won't give me a thing to
> shrink it either, just offers me the pill or Depro which will cause more
> pain and harm to my body and won't stop the excrushiating painful
> menstral cycle. My tubes are very tied and damaged i was told by a new
> Doctor. So what is a sad women too do about this 24hr sadness and pain.
> If you have a response or wouldlike to discuss more please respond. The
> adhesions were so bad at one point I would crawl to the bathroom and
> didn't make it all the time. My bowels were backed up for 8 days and i
> didn't know that I hadn't had a bowel movement, until my husband ask me.
> The sadness is that it is more madness to discuss and tell. Please
> respond to my never ending endo/tubal pain.
> >
> >Too bad we can't sue for ignorance and stupidity. You have found out first
> >hand what so many others have been through that read and contribute to this
> >list. If I was a doctor I would be embarrassed to be one, for the treatment
> >people have received who have adhesion problems.
> >
> >Many doctors are smart enough to weasel, squirm their way out of a lawsuit
> >and so many lawyers leave them alone out of professional courtesy.
> >
> >It is like little red riding hood and the wolf. Hopefully the hunter will
> >come along and kill the wolf. The wolf is too powerful and scheming for
> >little red. We have to walk carefully in the woods because the wolf is
> >always there.
> >
> >Too bad my illustration is about the very people that should be caring for
> >us. At a price we sometimes can't afford.
> >
> >My what big teeth you have,...... doctor?!
> >
> >-----Original Message-----
> >From: adhesions@adhesions.org [mailto:adhesions@adhesions.org]On Behalf
> >Of brokenwing
> >Sent: Sunday, January 21, 2001 2:23 PM
> >To: Multiple recipients of list ADHESIONS
> >Subject: I am new to this message board
> >
> >Hello!
> > I don't even know where to begin. I have been reading
> >alot of the postings and I can't believe you all know how I
> >feel! I don't feel so alone. which is they way I have been feeling! I
> >have been ready to just give up. I am a 33yr.old
> >female that just can't take the pain and frustration anymore
> >this has been going on for about 6 yrs now.I had a tubaligation after my
> >second child was born and that is when it all started. The Dr. really
> >screwed me up. They said
> >it would only take 30 min. and I would come out with 2 little bandade
> >incisions. After two and half hours and a
> >cesarean cut and a 2 in. incision from my bellybutton which
> >later got infected the Dr. told my husband my tubes where tide. I
> >later found out that he was just out of Med. school,
> >I think I might have been his first tubal, lucky me! Anyway,
> >8 months after that another Dr. in the same office, did surgery and
> >found out I had scar tissue wrapped around my bowels,ovaries, and tubes.
> >This Dr. told me he thought the other Dr. didn't put the laprascope
> >far enough down and put the gas in and distorted his own view, he just
> >kept cutting.
> >3 months later I had a total hysterectomy.I have had alot of problems
> >after that to. August of "99" I started having
> >bad pain in my lower right abs. They took out my appendex but I came
> >out with terrible pain on my left side they said
> >I was covered in adhesions, and that my sigmoid colon was on the wrong
> >side so they flipped it to my left side.When I
> >asked the surgeon about the pain he said there was nothing he could do.
> >That is when I started having problems eating.
> >I have probably lost 70 pounds since then. The drs. told me to up my
> >fiber. That is all I have been eating. I can't seem to digest any
> >protein, dairy, or raw vegs. The pain in my lower abs. is so terrible
> >at times. 6 months ago I was doubled over and I went to the hospital
> >they said I was really constipated to go home and drink Lax. When I
> >went to my Dr. he said it was ibs and it was just stress.Whatever.
> >Well last monday I was hurting really bad and had no energy
> >so I went to a GI Dr. He said that the tests I had 6 months
> >ago were all normal, that it is not humanly possible to have the pain I
> >am having. He said that surgeons don't like to operate on people with
> >adhesions because of law suits, he said thats just the way american
> >medicine is. My husband and I left there in tears. He was so upset
> >cause he pleaded with me for days to go! Thursday the pain was unbarable
> >so he took me to the hospital,I was totally constipated again
> >DR. told me to drink Lax. I have had nothing but juice, and popsicles
> >since then. they said to cut out the fiber,I am totally scared to eat I
> >am afraid it will just sit there. I feel like I am ripping inside when
> >my bowels are moving. I just don't know what to do. well I don't know
> >if anyone will read this but I feel so much better just getting this out
> >of my heart. My poor husband has really been the wind beneth my wings,
> >but it is really taking it's toll on us!!
> >Hey if you did read this thanks for listening!
> >
> >--
> >brokenwing
> >
>