Re: no sympathy needed

From: dtouch (dtouch@bellsouth.net)
Sun Nov 4 17:52:40 2001


Dear Karla: I don't think anyone even thinks you want sympathy. We are all in a terrible mess with our lives and trying to survive and sometimes some of these people have doctors who fight every step of the way not to give these suffering people something for pain besides antiinflammatory drugs which increase my pain so bad I would just as soon die. I have an appointment at 9:00 in the morning (Monday) and I sure hope they can do something for me to release my small intestine from my diaphragm. That is the most horrific pain one can even describe and never leaves me. May God bless and keep you. Love, Dolores from Louisiana dtouch@bellsouth.net

Cheryl Cole wrote:

> At Sat, 3 Nov 2001, Karla wrote:
> >
> >I just wanted to add that I am not out looking for sympathy. I have a
> >big purpose in reposting my quilt story....stopping you all from going
> >through all of these surgical procedures with physicians who don't know
> >what they are doing.
> >
> >I am going to be very blunt and honest...and my butt will probably be
> >kicked off of this list for saying what I am going to say...but it is MY
> >opinion and it needs to be said. This is not an attack on anyone. Too
> >often we have new people come to this list looking for doctors to help
> >them out. God Bless them all! But, without them knowing that their
> >really aren't any doctors out there that can help they wonder aimlessly
> >from one doctor to the next. Surgery after surgery. Soon they will all
> >end up like me!!!! Don't do it! Save up the money and go to Germany or
> >to the adhesion clinic in Scranton....its well worth it. You may not
> >get the cure you are looking for, but after you have been there you will
> >no that you've been to the best. People have to realize that each
> >surgery they go through makes their condition worse. The only answer is
> >to stop having the surgery...until they can go to the best. And
> >hopefully they can get everything taken care of with those doctors. I
> >have only heard of a few individuals who continue to have problems after
> >making these visits...so to me its time and money well spent.
> >
> >I suppose you are all saying...."then why is she looking to have another
> >surgery". I don't have a choice. Mine isn't about adhesions
> >anymore...although adhesions caused the problem. When I sit back and
> >count the number of surgeries I have had in my lifetime its probably
> >real close to fifty. All because I was so ignorant that I trusted in
> >the doctors to do what was right. Now, if I don't have surgery I will
> >die...and the dying part is getting closer and closer with each
> >hospitalization for infection.
> >
> >Don't do it! Do your research and get to the best doctor available. I
> >don't care if you like your doctor or not...I liked mine!!! I know that
> >none of you like to be in pain...me either, but pain is a lot better
> >than being dead!
> >
> >God Bless!
> >Karla
>
> --
> Karla, I am praying that things will work out for you. People need to know that
> even the best surgeons can't stop our bodies from trying to heal themselves the
> way that nature intended. They may be able to go and lyse the results of surgery
> but chances are the adhesions will return even more numerous than before. People
> to know this is natural and not the fault of any doctor. I personally have been
> to 4 different surgeons, all of whom have refused to do surgery until an emergency
> situation arises. I did have a lap scope and the doc just backed right out
> because there were too many adhesions to view any organs or move the camera
> and instruments around. While this is frustrating and the pain continues, like
> you say, it is better than surgeries that produce more problems. This board
> needs more people to speak up with their experiences; the bad and the good.
> Even the people who have went to Germany and Pa. seem to be still having the
> same problems after a few months. Everyone seems to be afraid to tell their
> results when they are not all that good. I have to say, if you are "kicked
> off" this board for expressing your opinion then I will also leave. This is
> supposed to be a type of support group and that means saying what you feel and
> know is right. When I first found this sight, I had hope that my situation
> would greatly improve. NOT. What I found was support, information, compassion,
> caring, friends I will probably never meet face to face, but I still consider
> friends none the less. My medical situation has not improved but my mental
> state has improved greatly. That is worth its weight in gold! I know I am not
> alone. So, Karla, keep your spirits up, your thoughts hopeful and us posted.
> Say what you want to say and know that I, for one, support you 100%.
>


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