Re: Gidge and fibromyalgia

From: dtouch (dtouch@bellsouth.net)
Wed Nov 7 22:44:50 2001


If you have fibromyalgia, let me know and I will tell you the site of a doctor in California and he is using an experimental drug and says he has had a 25% remission rate and I have fibromyalgia so I know the pain it can cause in addition to the adhesion pain. Sincerely, Dolores in Louisiana dtouch@bellsouth.net

Jo Eslick wrote:

>
> Hi Gidge [Image]
>
> Now I have a clearer picture! As far as adhesions on the bowel, I hope
> some of the others who read all the posts will pick up that thread for
> you and give you some details on their personal experience.
>
> During the surgery to remove my ovaries in April, the surgeon also
> "released" my bowel from adhesions in 5 different places, I only know
> this because I read the op report, unfortunatly I was still too "out
> of it" to remember many of the details. I can tell you now though,
> that I can feel that my bowel is involved again.
>
> At this point I am unsure what my next step is apart from an
> appointment with a surgeon in Sydney next month who has been
> recommended to me by Dr Wiseman. I am unsure that even IF he says he
> can operate, that I will go through with it. I am not the worlds best
> patient these days, and I'm not sure if I am physically or mentally
> prepared for more surgery at this stage. So I am simply comfortable
> to "wait and see" what happens when I meet him.
>
> Just curious about something you mentioned in your last message to
> me............. "but am not a candidate for pain management due to an
> allergy to local anesthetics so it's tough."
>
> What other methods of pain relief are you using? Many of us are using
> oxycodone or oxycontin for pain relief, have you tried this? I have
> mentioned on numerous occassions all the other strategies I have to
> help control & live with my pain. Helen Dynda posted an interesting
> article yesterday about fibromyalgia patients, and the strategies
> recommended to these patients, I have been using most of those methods
> for some years now, and they DO make a difference to how I feel. I
> haven't used any local anesthetics for pain management, I'm not really
> sure if they would help, I have noted that some get a small window of
> relief, others appear to find any real benefit.
>
> I hope that some of the others on the board can give you more
> information, [Image] I hope we see more of you on the board.
>
> Love & gentle warm hugs[Image]
>
> Jo (Australia)[Image]
>
> version see http://www.adhesions.org/forums/


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