>----- Original Message -----
From: "Bonnie L." <babyblu030@aol.com>
To: "Multiple recipients of list ADHESIONS"
<adhesions@mail.medispecialty.com>
Sent: Monday, November 19, 2001 8:47 PM
Subject: To Angie RE- Don't Agree W/Dr.
> Hi Angie,
> I just wanted to add my 2 cents. I am 27 years old and I have had many
> surgeries reguarding Endo and Adhesions. My pain first started when I
> was 14, around the time I started to menstrate. I lived in constant
> pain every month. I was diagnosed at 16 with endo. After the birth of
> my daughter, I notice the pain that I only had once a month was now
> constant and excruciating. I had docs tell me that it was nothing, that
> I needed to deal with it blah blah blah. Well, I was 25 when I met the
> GYN that changed my life from bad to absolutly worse. The first surgery
> he said " we will go in by laproscope and see what we find, but we
> cannot do anything if we find anything of problem" I said fine as long
> as you concure with the other docs. After that surgery I went on
> Depo-Lupron shots, which helped for awhile and then just quit helping
> all together. My GYN said " fine lets do a Uteral Sacral Nerve Oblation
> ( which is called a L.U.N.A ) I said fine. Worked fine but only on the
> left side. GYN said "fine we'll try a Presacral Neurectomy ( which is
> more severe surgery because they do this via laparotomy)" I said fine.
> Worked for 1 month. GYN said " fine let's remove your right ovary." I
> said fine if it works I will do anything to make this pain stop. Woke
> up in recovery to hear" we couldn't take your ovary out because it is
> adhered to your pelvic wall ( this was done by laprascope) we have to do
> a laparotomy" Fine, I said I trust you. Now by this point I was ready
> to punch this doctor because all I could think of was this is my life!
> Nothing is going to help. He's the doctor so I have to listen to him,
> he knows best. They removed my right ovary and low and behold, it did
> not help any. Not to mention all this surgery and reoccuring adhesions,
> that made the pain by far the worst. Finally he did a total abdominal
> Hysterectomy with left removal of my ovary. (at 26 I was left with no
> choice) I went a year pain free. Then it happened, 2 days after my one
> year post op check the pain started again. Worse than ever. I had
> found another PCP and called him in tears. I was crying so hard because
> of the pain that he wanted me to come in so he could get me some pain
> relief. When I had called my GYN he told me " There is NOTHING more I
> can do for you, we've taken everything out" He was willing to cut me
> open all those times, but not willing to deal with the post surgical
> adhesions that have now taken over my life. I live on Morphine now all
> because I wanted the pain to stop.
> Where am I going with this story? Well Angie, make sure you ask alot of
> questions. If you don't trust this Doc find another one. Don't make
> the samer mistake that I did , because if you do you'll end up like me,
> in your twenties and in menopause, and worse never be able to have
> children. I don't mean to scare you but if one person can learn from my
> mistake I'll be happy. Please make sure that you trust your Doctor.
> Take Care and good luck!
> Bonnie
>