No I don't have cancer. I am dying because I have adhesions. I am dying because I allowed doctors to remove my bladder and now due to repeated surgeries my kidneys are failing and they can do nothing to stop them. Oh, right now they are functioning ok....at a reduced level, but ok. My family was told that it was just a matter of time in April...I had been hospitalized early in the month with a major infection and then again late in the month with kidney failure. With the infections occuring so close to each other they feel that it will be only a matter of time before the kidneys shut down and cannot be brought back. Yes, there was hope that surgery would correct the problem...I had been waiting for this surgery for about two years...but now have been told that the urologist doesn't feel that he can help me...so he won't perform the surgery. I went back to the first urologist who got me into this position in the first place and he says he won't touch me either. So now I wait. But as I wait I try to reach out to people like you...who are in the same position I was five years ago...and try to stop them from going down the same road. Kimmi...read my story on the quilt. There is just so much to say and I apologize for coming down on you...but I want you to be able to see those kids of yours...for years to come.
-- Karla>----- Original Message ----- From: "Kimmi&Dave" <kimmi3@mediaone.net> To: "Multiple recipients of list ADHESIONS" <adhesions@mail.medispecialty.com> Sent: Saturday, November 24, 2001 12:31 AM Subject: Re: Welcome Kimmi & Dave from Sally
> Karla, > Sorry I made ya scream and make you sick., I was confused on this part that > you wrote > > How would you like to be only > 45....tired of living your life the way I have to live mine...but know that > you won't be able to be a wife or a mother....not for very long. > > Are you terminally Ill? are you dying from cancer? Sorry if its upsetting. > > Sorry I can't think of anything else that may help me, I am on my last nerve > living in pain for 16 years, the last 5 became full chronic pain, I am > unable to do so many things, and it makes me feel totally worthless. I do > love and cherish my husband and Kids, and all are awesome, and always > willing to help. They constantly ask when I come home from the doctor.. Is > he gonna fix you mommy! > Really have nothing to say, Nope not today hon. > > Well off to bed soon. > Hugs > kimmi
>> ----- Original Message ----- > From: "Karla" <ifirgit@new.rr.com> > To: "Multiple recipients of list ADHESIONS" > <adhesions@mail.medispecialty.com> > Sent: Saturday, November 24, 2001 12:37 AM > Subject: Re: Welcome Kimmi & Dave from Sally > > > Kimmi, > > > > I write this with the best of intentions....but I know that there is pain > > and anger behind it. I read this post and it made me want to scream. > > You make the statement that you would rather take a chance at having > > something work than living like you do everyday.....Kimmi you have no > clue! > > It can get worse and I guarantee you it will...with each surgery it will > get > > worse and worse. I do the same things you do for pain...they don't help. > I > > have some relief with ms contin and liquid morphine...but not much. But > for > > you to say that you are only 34 and you are tired of not being able to be > a > > mother or wife the way you want to be....it makes me ill. I am sorry to > > come down on you...but yes it makes me sick. How would you like to be > only > > 45....tired of living your life the way I have to live mine...but know > that > > you won't be able to be a wife or a mother....not for very long. > > Because when you were 34 and in so much pain that you would do anything to > > have it end...including more surgery...and then more surgery and then > > finally need surgery so bad that if you don't have it you will die....but > > now no surgeon will touch you....even though they know that you will die. > > Cherish every moment that you have with your husband and your kids...even > if > > they are painfilled and not what you would like to give them....at least > > they are moments that you can treasure. Don't put yourself at risk for > > losing those moments any sooner then you have to. > > > > Karla > >
>> > ----- Original Message ----- > > From: "Kimmi&Dave" <kimmi3@mediaone.net> > > To: "Multiple recipients of list ADHESIONS" > > <adhesions@mail.medispecialty.com> > > Sent: Friday, November 23, 2001 11:17 PM > > Subject: Re: Welcome Kimmi & Dave from Sally > > > > > Sally, > > > Thanks for the welcome.And no you won't offend me, everyone is entitled > to > > > their opinion. > > > I have had 12 abdominal surgeries, I don't know for me, I would rather > > take > > > a shot at having something work that living like I do everyday. Its a > > > possibility that nothing will change or things can get worse but there > is > > > also the possibility that at least it might give me a few months or > years > > > without or less pain maybe that's just living on hopes and dreams. I > know > > > the pain management doctor always says people who are chronic pain are > > > willing to do anything that offers to be out of pain, and I must be > > careful. > > > For the most part all the doctors have said no more surgery unless it > > > becomes life threatening because of the amount of surgeries I have > already > > > had. But 1 doctor my gyn doctor when I see him he says yes and send me > to > > > another surgeon because he wants back up just in case something is in > > there > > > that's not his field. and the second surgeon replies no lets try this > > first, > > > so for 5 years I have been trying this and that and nothing works. I > take > > so > > > much medication to ease off this pain and that doesn't work. I go to all > > > these PT' programs to ease off pain that doesn't work. I get injections > > that > > > doesn't work. I just need something to work and have to live on that > hope > > > that something someday work. I am only 34, and I am tired of not being > > able > > > to be the mother and wife I want to be.. > > > Hugs > > > Kimmi
>> > > ----- Original Message ----- > > > From: "Sally Grigg" <lostcst@mcn.org> > > > To: "Multiple recipients of list ADHESIONS" > > > <adhesions@mail.medispecialty.com> > > > Sent: Thursday, November 22, 2001 12:59 AM > > > Subject: Welcome Kimmi & Dave from Sally > > > > > > > Dear Kimmi, Welcome to the board. I'm sorry its taken so long to write > > > > to you. My computer broke and I was "stranded" here in the wilderness. > I > > > > wish you would go to the adhesions site http://www.adhesions.org and look at > > > > everything. The quilt and all our stories would be a good place to > > > > start. And please do not be mad at me for what I am about to say, but > > > > telling your doctor to do a full big cut and take out what ever he > feels > > > > like ...well, it might not be such a good idea. So many of us here on > > > > the board have had surgery after surgery and no one would recomment a > > > > full big cut unless it were life or death. > > > > > > > > I know a lot about pain. Even after your surgery you could be in worse > > > > pain. I'm so sorry to say that, but its true. We get our hopes up, > and > > > > go through the ordeal, but it doesn't necessarily help with adhesions. > > > > In the last 18 months I've had three laproscopics, one of which became > > > > a big, full cut because he sliced my bladder. My abdomen was full of > > > > adhesions and he couldn't see. Now a different doctor with better > > > > equipment might not have done that. > > > > > > > > Anyway, welcome to the board. There's so much information here and > great > > > > love and support. The emails from Helen Dynda are great. All my love > and > > > > any help I can give you are yours for the asking. And I believe you > > > > when you say it hurts so bad that you don't care what they do, but you > > > > do care, and it could get worse. > > > > > > > > Lots and lots of water is good. It helps flush you out and can't hurt, > > > > although I must say, and you know this already, I'm sure, I'm not a > > > > doctor nor do I have medical training just 34 years of experience with > > > > adhesions. Prayers to you and yours, Sally at > http://www.howardcreekranch.com > > > > > > > > > Helen,Oh that's right forgot you were not US.. Its possible they > carry > > > > > that drug, you can actually go to an online pharmacy and find that > > > > > out.You know I sometimes wonder where these doctors heads are > someday > > > > > and its sad we put our lively bodies on the table and let them do > what > > > > > is best. So then it becomes live and learn unfortunately.Now if you > > > > > need another you will have state take all of what you see that many > > > > > not be the full cause now but those adhesions are going to grow and > > > > > attach they need to be cleaned up.With Dr Delise which I need to > make > > > > > an appt myself with him to discuss surgery. He mentioned he would > > > > > start with lap and then what if that wasn't good enough do you have > a > > > > > problem will full inssision. So I try to tell him like this one we > are > > > > > approaching you go in there and you do everything that needs to be > > > > > done. If you anything mentions in your brain well this one might > > > > > suspect to go bad treat it now.I don't care about the Lap or full > size > > > > > cut just do it and do it now.Tonight again my stomach is swollen to > > > > > the size of a pregnant woman and the pain pressure feels like I > could > > > > > push out a baby.. Its terrible and you try and relate that one to > male > > > > > doctor they have no clue never pregnant don't understand.hopefully > > > > > together we can all get bits and pieces of treatments and get em all > > > > > together as one and present this to the doctors and say see > > > > > FIXME!!! Well hon gotta run.. Happy thanksgiving.Kimmi > > > > >
>> > > > > ----- Original Message ----- > > > > > From: Helen Gibson > > > > > To: Multiple recipients of list ADHESIONS > > > > > Sent: Wednesday, November 21, 2001 9:27 PM > > > > > Subject: Kimmi > > > > > Dear Kimmi, thanks for the post, I will consult my Drs and > > > > > see if I can get a referral to a pain management Dr, I don't > > > > > know how long I will have to wait, but I will get the ball > > > > > rolling.As far as him not removing all the adhesions, who > > > > > knows what he was thinking, maybe he was in a hurry?, but at > > > > > least I know now what some of the pain is being caused by.I > > > > > will ask my Drs about the neurotin, it may be called another > > > > > name over here in OZ, and see if I can take some to see if > > > > > it helps at all.Thanks for caring!!hope your having a good > > > > > dayLoveHelen G > > > > > > > > > > > > > to the unsubscribe form at > http://www.adhesions.org/forums/listcmds.htm > > > > > > to the unsubscribe form at