NEXT STEP: A thanksgiving Promise

From: Ginny Halpern (gingin99@home.com)
Tue Nov 27 19:50:04 2001


My dear Friends:

I am touched and I feel a sense of encouragement from your many responses to my promise to try and get us the recognition and the medical help we desperately need.

I will be working with Dr Wiseman ,Helen and several other key people to put together a survey and send it to all of you for reply.

I hope that once I have enough data on the issues at hand I will be able to begin the long, arduous task of petitioning local and regional and even state legislators to recognize us as a definitive group of sufferers in need of adequate medical attention.

Meanwhile, Please hang tough. Dr Wiseman and I need to make certain that anything you fill out or respond to is valid, legal and able to be presented to all parties for review.

I know you all have feelings of desperation, frustration and some of you feel you are not being taken seriously by family, friends and physicians. I hope to be the voice of the many, after I collect your feedback and process it.

I wish you all the love and hope for a more comfortable tomorrow. I will fight for us for as long as it takes. I am so damn tired of feeling this way and I want to be able to validate my pain and your pain to the world, one day soon. Hugs

ginny


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