Dear Brenda,
Welcome to the Adhesions Board, here you will find friendship and support, information and understanding for you, your family and your pain.
Your story is sadly familiar to us here, many of us share very similar symtoms and have undergone treatment along the same line as yours. The most important piece of advice I can offer you is to not consider surgery as a cure for your pain at this time. Very little research is being done, apart ffrom a few "barriers" which are designed to protect vulnerable organs during the healing process after surgery. At this time the results are very mixed and a limited number of people claim success in being free from pain.
One of the things you need to be aware of for the future is that only a very experienced surgeon who has many years experience in dealing with and understanding adhesions should be allowed to perform any kind of surgery on you.
There is an adhesions quilt on the IAS site and I urge you to read the stories there, as well as adding your own. The only way we can help ourselves at this time is to make people more aware of what we live with on a daily basis.
I am now considered a chronic pain sufferer and have a team of doctors and physiotherapists working on my long term care and pain management. I use strong pain medication along with many other diversional therapies. The most important thing to remember Brenda is that each of us is different, and so different therapies will have varying affects on us. I use meditation, breathing exercises and visualisation. When I am having a long night struggling with pain I read, listen to music or watch an old movie on TV.
I suggest you have a long talk with your family doctor and get a referral for a pain councilor and any other specialist who can help you your own pain management plan. If you have any questions, or would like to know what I do I would be happy to give you the details. Just write to me at wallamara@hotmail.com.
I hope my letter helps you, and I look forward to hearing from you again soon.
love & gentle warm hugs
Jo (Australia)