ADHESIONS Messages for January, 2002: Re: Jayne from Sally

Oh Jayne!

ROFL!!!! you sound just like me! If you survived reading my reply to you.... believe it or not I am usually the upbeat and positive one here...LOL

You will have to look in the archives and read some of my happier posts. I am looking forward to reading your posts....I know I have said that already, but most of what you wrote to Sally...well it was so much like the way I usually talk!

love & hugs

>From: "Jayne"

>Reply-To: adhesions@adhesions.org

>To: Multiple recipients of list ADHESIONS

>Subject: Re: Jayne from Sally

>Date: Sun, 6 Jan 2002 00:26:12 -0600

>Hi Sally,

>I'm already on the quilt so can I add more to it?

>Yes, I have been through the ringer haven't I? I am very concerned that

>this new problem may lead to more surgery, especially if the repair last

>year didn't work but I am also aware that this could create more adhesions

>which puts me in a Catch 22 situation, doesn't it?

>If my rectocele has returned or something like that then only surgery can

>fix it can't it? What I would really like to know is why I keep getting

>these darn things if my pelvic floor is tightened and should be holding my

>organs up.

>I often say to my family that when I die donate my body to science (if

>there's anything left) as I must be a scientific wonder with the amount of

>medical problems I have had to endure over the years. *-)

>Fortunately, as I told Jo, I am usually an upbeat person which I know helps

>but the pain and discomfort does get to me once in a while and my family

>knows about it.

>One other thing that is driving me nuts is since the pelvic surgery in 2000

>I have had chronic pain in my tailbone. Oh it's bad. I have been to my

>family doctor about this (who is usually understanding but must have had a

>bad hair day when I went to see him about this), my OB-GYN and my

>orthopaedic surgeon but they all say it's arthritis and that pelvic surgery

>can aggravate the tailbone anyway especially in my case where my left leg

>won't bend and they have to strap it up to do the surgery plus they have to

>put me in a position that they don't normally do to other women. I am the

>point now where I am ready to march into one of these doctor's offices and

>demand they do something because obviously I can't stand or walk for too

>long because of my knees and now I can't sit too long because of this darn

>tailbone. Ay yi yi.

>Yeah, I'm a mess but I'm alive, can kick with one leg, and I still have my

>hands & fingers to enjoy my computer life.

>Take care

>Jayne

> >

>----- Original Message -----

>From: "Sally Grigg"

>To: "Multiple recipients of list ADHESIONS"

>Sent: Sunday, January 06, 2002 1:07 AM

>Subject: Jayne from Sally

> > Boy, Jayne, you seem to have been through a lot. I'm so sorry. Please put

> > your story on the quilt. It will make a better case for everyone because

> > someday, we need to make Congress appropriate funds for adhesions research

> > and so many people come to the board once or twice with really classic

>cases

> > of adhesions and then we never hear from them again. We need to gather all

> > of the information we can, so that we can help the government help us,

>even

> > though they don't know yet, that they really want to. Love, and I have a

> > home page if you are interested, http://www.howardcreekranch.com Love, Sally