h>From: traski007@aol.com (Tracey)
>Reply-To: adhesions@adhesions.org >To: Multiple recipients of list ADHESIONS ><adhesions@mail.medispecialty.com> >Subject: Re: Adhesions,Hirschbrungs Disease >Date: Tue, 22 Jan 2002 02:34:27 -0600 > >At Thu, 15 Jul 1999, smithy@maine.rr.com wrote: > > > >Iam not real good at this internet thing but I have had so many problems > >with adhesions and scar tissue I looked you up and decided to write. Iam > >23 as of July 4th and when i was born I had Hirschbrungs disease. I had > >8 major surgeries before I was 3. Then I was fine for many years after > >that. In May of 1998 I started throwing up almost after every meal. I > >had a group of Doctors that could not do anything but stand around. > >December of 1998 I found the three doctors that were sure to change my > >life. They did. In febuary of 1999 they performed another major > >surgery. Removing a lot of scar tissue and adhesions from all my old > >surgeries. They also found out I have Polycistic ovaries. so they > >removed 2 softball size cysts from me during surgery finding out later > >it was my fillopian tubes. They said surgery as a baby probably damaged > >them pretty bad. They then cleaned my liver free of scar tissue and > >adhesions. I guess that is why I had that greenish color for almost a > >year. Well I guess why I am writing is because in the last month I > >started throwing up again and I have this bee sting pain near my > >incision. I was wondering if anyone had any feed back at all on my > >condition or my situation. Thanks for your time I appriciate it. Megan > >Kittredge. > >Hello there-I'm not sure what I want to say, but I found this letter >that you wrote about having hirschbrungs disease, and I needed to write >to you. My son is 4 months old, and was born with HD, and had surgery, >and the colostomy bag for 3 months, and a few weeks ago, had the >reversal surgery. Within 1 week after being home, he went back to the >hospital, mainly because he was dehydrated, and really wouldn't eat >much, in fact we just got home from the hospital today, and he did fine >in the hospital (while he had an I.V in his arm) but now that we are >home he won't eat again, he hasn't since we left the hospital, and threw >up tonite, and is looking dehydrated again (sunk in eyes)... Basically >I guess I am just looking to find out about your experience with HD and >do what I can to help my son get through this, We feel that we may have >a long road ahead of us, him only being 4 months old, he really can't >tell us anything about what he is going through.... after reading your >letter I could just cry, because I can't picture this happening to our >baby, especially since the Dr. told us everything should be ok, that >most kids are very normal after going through this "somewhat common >procedure" but it seems that your surgery at a young age proved to be a >mistake for you..why? Please write back with your advice or knowledge >about this disease, I know that it is passed on from us, but don't know >about post surgery problems... I will be looking forward to hearing >from you........Tracey > >-- >Tracey > >THINKIN MY OPINION ,YOU HAVE ADHESIONS ON YOUR LIVER,AS I KNOW I DO AND IT >WILL MAKE YOU VERY SICK,KIM KNOX