At Thu, 14 Feb 2002, Heather wrote:
>
>At Wed, 13 Feb 2002, Robin wrote:
>>
>>Dear Heather
>>My adhesion problem started over 18 years ago. Having pain off/on until
>>a few years ago when I started having it 24/7. I have had every test
>>there is & none of them show adhesions. There is actually no test left
>>for them to give to me. Some tests might show your intestines twisted
>>because of the adhesions & some tests they might have a hard time
>>finding an organ, but not one test that actually shows adhesions.
>>Sometimes a colonoscopy might show signs that the intestines are twisted
>>are narrowed. It is a good thing to go through all the tests, because
>>that will show the Dr that you really want to find out what is wrong
>>with you. Once, a Dr recomended a test that I had already had, well I
>>told him they didn't find anything & he accused me of just wanting pain
>>meds, well, since then, I do any and all tests that are recomended. Yes,
>>I want pain meds, am I addicted to them? Well, only as far as I am
>>addicted to life. I guess I could live with out the meds, but then I
>>would be totally bed riden & in horrible pain. That happened to me when
>>they cut my meds back a few years ago. I was to take only 2 pain pills
>>a day (grown men with broken legs only take 3) & of course I could take
>>ibuprofin 2 times a day. So, my advise is to do all tests, just to rule
>>out anything else. There hagve been cases where additional problems
>>were found during the test. Good luck to you.
>>robin
>>
>Thanks Robin for the reply, I appreciate it very much! As of this
>morning I applied for individual health care coverage and now have to
>wait until March 1st for it to become effective. Then I can schedule an
>appointment with my GYN that did the first two scopes and see what he
>recommends. In the mean time I have 14 days to countdown till I can
>even get some pain meds...Ibruprofin, just doesn't even cut it anymore!
>And if I call now about getting any type of advice or treatment for the
>abdominal pain, then it will be considered a pre-exisisting condition
>and the insurance won't cover a dime of anything I have done related to
>the adhesions! So, as for now I'm in another catch 22 and will just have
>to wait it out!! Everyday is getting worse and more frustrating...I know
>where you are coming from in regard to having all possible tests
>done...been there and will do it again if I have to! Please say prayers
>if you don't mind that these next 2 weeks go by quickly and as of March
>1st everything works out with the insurance and I can begin to get
>relief! Thanks again for the reply and hope to talk with you again
>sometime, I appreciate you listening yo my story and giving me a chance
>to vent! My fiancee is wonderful, as he's been with me throughout every
>test and surgery, but sometimes I feel bad constently venting to him
>alone about how I'm feeling, as I know it is hard for him to see me this
>way. So, my appreciation to you is very deep.
>Have a great day, and hope you are feeling well.
>Heather
>>At Tue, 12 Feb 2002, Heather wrote:
>>>
>>>Hello all...I've read many of your postings and related to many. I have
>>>had 2 laparoscopies with lysis of adhesions in Sep 99 and Aug 00. The
>>>first experience I went through the whole gammet of tests with no
>>>apparent findings, until finally the GI I was seeing recommended I see
>>>my OB-GYN to discuss possible endometriosis. After the first scope
>>>adhesions were found and removed..along with very, very
>>>hyperperastalsis. Not a year later...the pain returned. Then the
>>>second scope came with again lysis of adhesions however, the recovery
>>>turned into a nightmare for me, as in the recovery room, I experienced
>>>uncontrolled shaking and ended up being diagnosed with seizures (WHICH I
>>>AM HAPPY TO NOW SAY WAS NOT THE CASE..the neurologist was completely
>>>wrong. I ended up on Dilantin and became toxic on it..thus ending up
>>>back in the hospital for treatment of that. It ended up being a 2 month
>>>recovery and loss of my job for excessive absenteeism. So...as for
>>>today, I have been having pain for the past 3 weeks, with it getting
>>>worse. I have that sharp, stabbing pain in my right lower quadrant,
>>>constant cramps, and abdominal distention. I also experience pain with
>>>intercourse. I am 90% sure that the adhesions are back and I know
>>>what's going to happen next...however I am very scared!
>>>I guess I am just in need of venting my frustrations to those who
>>>understand and also was wondering if anyone has had any tests done,
>>>other than a scope, that have shown adhesions or if anyone has any great
>>>advice on what has worked for you to help stay pain free for a long
>>>period of time. Thanks for reading this. Heather.