Re: Wow! I'm not crazy!!
From: Renee (remark@vci.net)
Thu Mar 7 15:38:40 2002
At Sun, 13 Feb 2000, Susan_OR wrote:
>
>Thanks Kim! This has been very imformative. I had no idea that there
>was such a high chance of the adhesions and pain coming back after
>surgery. At least I understand my docs hesitance to do more surgery
>better now.
>
>Take Care,
>Susan
>
>At Sat, 12 Feb 2000, KIM MERRELL wrote:
>>
>>At Fri, 11 Feb 2000, Susan_OR wrote
>>
>>HI SUSAN!
>>
>>WELCOME TO THE FORUM! IM SORRY TO HEAR ABOUT YOUR SITUATION.
>>I THINK AT ONE TIME ALL OF US THOUGHT THAT WE WERE CRAZY OR GOING CRAZY.
>>
>>JUST TO LET YOU KNOW..THAT I BELIEVE THIS IS MOST INFORMATIVE WEBSITE
>>THERE IS THAT I HAVE FOUND. IT CUTS THROUGH ALL THE BULL AND TELLS IT
>>LIKE IT IS.
>>
>>I FEEL LIKE YOUR DOCTOR SHOULD BE MORE EXPLANATORY IN THEIR
>>TALK ABOUT THE FACT THAT YOU "COULD" HAVE ADHESIONS.
>>PLEASE...PLEASE..FIND OUT MORE ABOUT ADHESIONS BEFORE YOU EVEN THINK OF
>>HAVING ANOTHER SURGERY. IM SURE YOU HAVE READ ALL OF OUR STORIES. I
>>TOO..WAS TOLD..IT COULD BE ADHESIONS..OR ITS PROBABLY ADHESIONS
>>AGAIN..IN THE MOST
>>NONCHALANT WAY..THAT I JUST WENT WITH THE FLOW & DID THE SURGERIES AGAIN
>>& AGAIN TO NO AVAIL. NOW IM WORSE OFF THAN I EVER WAS. (PAINWISE THAT
>>IS)
>>
>>SOMETIMES A SECOND OPINION IS NEEDED. YOU MUST PUSH YOUR DOCTOR TO
>>EXPLORE ALL OF YOUR AVENUES. ITS YOUR BODY..AND ONLY YOU KNOW WHAT ITS
>>FEELING. I HOPE THIS FORUM HAS HELPED YOU LIKE IT HAS HELPED ME. I
>>WILL DO ANYTHING TO HELP GET THE WORD OUT ABOUT OUR "STICKY" SITUATION.
>>
>>GOOD LUCK SUSAN! KEEP IN TOUCH.
>>
>>KIM M
>>
>>>I am so thankful to have stumbled upon this site today. I'm not the
>>>only one to have this pain after surgery! I've had 3 abdominal surgeries
>>>in the past year. The last surgery was a total abdominal hysterectomy
>>>caused by invasive cervical adenocarcinoma. After my first surgery I
>>>started having some unexplained pain that has just gotten worse with
>>>each surgery. It's at an all time high right now. The CT scan didn't
>>>show anything and my doctor doesn't know what is causing my pain now.
>>>She mentioned briefly that "it could be adhesions" but said that she
>>>didn't want to do surgery because that would cause more. So what am I
>>>supposed to do? I'm 28 years old. Living the rest of my life in this
>>>much pain just isn't an option. I'm taking the max dose of naproxen and
>>>tylenol everyday with no relief. My doctor just wants to "wait and see"
>>>what happens. Easy for her to say!! She won't even give me anything for
>>>the pain. I also have Fibromyalgia and IBS...which is making it that
>>>much harder to diagnose the pain.
--
I recently had laproscopic surgery in Nashville, TN and intergel was placed in my abnomen. Since then, I have had more nausea, stomach swellling, and some of the gel actually leaked out of an incision that lost its stitches and sealant material. If anyone out there has had any experience with these problems, please let me know. I wish everyone out there with these problems the very best.