I am new to the group too. I can truly sympathize with your story. After fighting endometriosis for several years with multiple laparoscopies, laparotomies, etc. I had a total hysterectomy in 1997 at age 21. It was devistating to me, but I just could not go on in that kind of pain any longer.
I have battled and continue to battle adhesions from the endometriosis and all of the surgeries. My last surgery for my adhesions was November of last year.
I also battle very severe interstitial cystitis (a condition in which the lining of the bladder is damaged). This causes intense pain and I sometimes experience blood in my urine as well.
When my adhesions flare up, I do get a crampy pain that isn't there all of the time, but it can get very intense at times.
I hope that helps you. I agree with you. It is comforting to know that there are people out there who know and understand how we feel.
Sincerely,
Kristen
--- Jen <jrtlady@iaw.on.ca> wrote:
> Hi Everyone,
>
> I'll start by giving my history and I'll try to keep it brief.
>
> In 1980, I had an ovarian cyst removed. (I was only 13)
> 20 years later (march 2000) I became suddenly ill. I ended up having
> surgery in which they discovered my right ovary had adhered to something
> and a fallopian tube had wrapped around my bowel and caused an
> obstruction.
> Everything was fine until October 2001 when I thought I had a bladder
> infection.
> I went to the dr with complaints of pain in my lower pelvic area and
> sure enough there was blood in my urine. The urine cultures however
> came back negative for bacteria. I was treated with anti biotics
> though. The uncomftorableness persisted so he gave me another anit
> biotic and then in December at my request, I had a pelvic ultrasound
> done. It too was negative.
> Now it is April and for the last couple of months or so, I have been
> experiencing pain in the area of my right ovary as well as that achy or
> crampy feeling in my lower pelvic area. The pain isn't excruciating and
> isn't there all day. It just makes me a little uncomftorable and alot
> scared.
> Well, I went back to the dr's today and sure enough, blood in my urine.
> I am going Monday for an IVP.
> I suggested the possibility of adhesions to my dr. He said if it was
> adhesions iit would be more of a crampy pain. This is how I would
> describe the lower pelvic pain I am experiencing.
> Anyway, Hope that wasn't too long winded. I think I'm looking for
> reassurance at this point to be honest.
> Hopefully, the IVP will be negative too.
> Thanks to everyone for listening. It's so good to know this message
> board is here.
> Sincerely,
> Jen
>
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