Re: I'm your adopted Sister Jo...... you lucky gal you...tee hee

From: Jo Eslick (joanne@bombobeach.com)
Mon May 6 07:44:56 2002


Dear Brockenwing,

Life is such a weird thing sometimes isn't it.... as the old saying goes, you can choose your friends but not your family. If you scratch just below the surface of most households, of most families you will find disfunction of some sort. It is a sad fact of today's society. I love my brother very much, and I would drop everything in an instant if he needed my help.... I have done that on more than one occassion for mt other brother.... even while I myself was desperatley ill and fighting pain. I hope that deep down he feels the same way, that's what I choose to think.... who knows one day things may change....

Here, we are all family, because we share the pain and alienation and debilitation of our disease.

I am currently putting together a submission to the Australian Federal Government about adhesions and it struck me when you mentioned how family and friends think because we had a surgery last year.......we should be alright... they don't understand and to explain it takes too much energy on their part to listen and digest the information and this next paragraph is a direct quote from my submission:

"They take up valuable space in our hospitals, cost the nation unfathomable amounts of money in public health system surgery, medicines and rehabilitation facilities. Many women who suffer with this illness begin to wish they did indeed have cancer…. At least that is something that is understood and something that when you tell someone, they reach out in sympathy, or point you in the direction of a support group or the right kind of specialist for the type of cancer you have."

I have often found myself comparing myself to a cancer patient..... this is a gradual disease, that if we allow it, it slowly consumes us organ by organ...each time making our pain worse. That is why the IAS and bombobeach.com is so important, because here we offer hope, we offer education, we offer choices and most of all we offer LOVE, UNDERSTANDING and FRIENDSHIP, without these things, our pain would be harder to bare and harder to overcome.

love and gentle hugs, Jo

At Sat, 4 May 2002, Browkenwing wrote: >
>Dear Chrissy and Jo
> I can't believe you gals were talking about
>how family and friends have been treating you cause I have been feeling
>pretty upset about the same thing and feeling
>pretty alone too! I mean I have a wonderful husband and two
>great boys! But my Mom and Dad both past away and I have a sister that
>really doesn't want anything to do with me cause I don't have anything
>to offer her materialistcly
>and my brother practicly lives on the streets(His choice)
>I never hear from him to even know if he is alive or dead!
>The few friends that I do have just do not understand cause they think
>since I had the surgery to remove adhesions last July that I should be
>cured and not having anymore problems!
>I am in more pain now then ever before! I am sorry to be
>whining but I am just soooo tired of this :-( Thanks for
>listening to me :-) You gals are great! Love you Lots!
>
>--
>Big Pain Free Hugs To All
> ~Browkenwing~
>

--
Love and gentle hugs,
Joanne Eslick
Founder Australian Adhesions Support Group
http://www.bombobeach.com
Australian Co-ordinator of
International Adhesions Society
http://www.adhesions.org

--
I am not a medical person, and all my messages are based
on personal experience.  I am a fellow adhesions sufferer
reaching out to help others.

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