Re: Karla & Millie

From: Robin (rmasse2333@aol.com)
Fri May 10 06:58:00 2002


Dear Jean, I think you were too harsh on Millie. We do tend to have the same problems year after year & that is not "calling wolf". If I was Millie, I would want to leave too, I don;t think this is the way to help or support someone. robin

At Thu, 9 May 2002, Jean Long wrote: >
>Karla & Millie,
>
>Karla,
>Some places have a choice of which contrast to drink and others don't.
>I know this because that is how it is where I am from and the nurses made me
>aware of it so I went to the place with the kool-aid stuff the last time.
>I never saw the clear where I live though, just red or white.
>
>The red kool-aid stuff was much better and you also don't have to drink as
>much of it as the white chalky stuff.
>If you allergic to dye you "must" drink the yucky white stuff, no choices.
>There was a guy who was allergic when I was there and he had to drink the
>white stuff and was there much longer than I was. He envied me getting the
>better stuff.
>
>The contrast never showed my partial bowel obstructions and not even my
>ulcer or hiatal hernia.
>They found ulcer and hiatal hernia with endoscope and didn't see the
>obstructions at all until they went inside with surgery.
>
>I have to agree with you on the advice to Millie.
>
>Millie,
>You did go through this same exact thing in the past and all for no reason.
>You obviously didn't have any obstructions a year ago because it is
>"impossible" to live very long with an obstruction, let alone to live a year
>with obstructions.
>You also have never had the NG tube which you kept dwelling on a year ago
>the same as you are doing now.
>Look at your posts from the past and you will see they are exactly the same
>as now.
>You had been doing so much better about it for quite a long time since you
>botched up your chances at Scranton because of it a year ago, and now it is
>back to the same thing again.
>
>You asked and received lots of answers to your questions "many" times in the
>past and also now again, but they are the exact "same" questions and answers
>as before. The answers won't change by asking the same ones over and over
>again.
>You aren't new to this at all and you have had all these tests and symptoms
>before.
>You know by now there is NO miracle cure, you choose not to take laxatives
>(and small amounts of "M.O.M." is not what I mean), don't take pain meds,
>and you say you don't want surgery......well, with adhesions there just
>aren't choices or miracle cures as you know by now. Those are your choices
>and not good ones but pretty much the only ones.
>If you cry wolf too many times no-one will take you seriously when a true
>emergency situation arises!
>
>I have been taking 10-12 Herblax "every" night for "many" years now and have
>accepted this and my pains and discomfort from adhesions as a part of life.
>My own family didn't even know until recently that I have the adhesion
>problems or take Herblax to move my bowels and I have had these problems for
>about 30 years.
>It might not make me happy but you can choose to be miserable and dwell on
>it the rest of your life or try to live life the best you can under the
>circumstances since there are no real choices.
>
> I "know" the difference when enough is enough and I need surgery, and then
>I also know they will come back again even if I have surgery so I hold off
>as long as humanly possible, which is usually until I am bed-fast.
>The surgeries I had 2 years ago and the extreme pains I had and still have
>were not for my abdominal pains or problems.
>They were and are due to other unrelated and totally disabling problems,
>some of which could cause amputation.
>I need a wheelchair just to go shopping or any constant standing or walking
>longer than 1/2 hour even with the Oxycontin.
>I am not comparing my pains to yours or saying mine are worse than yours but
>just want to clarify the difference in me trying to find help and that it
>has nothing to do with the abdominal adhesions.
>Millie, I don't mean to hurt you are put you down in any way but sometimes a
>person needs a little wake-up call to put you back on track.
>
>We are always here for you in friendship and to offer support and that's
>what I'm trying to do.
>JEAN
>
>By being only what "you" are, you can awaken each morning to a new day
>that's an opportunity to seek whatever you want-
>with no previous deceptions to get in your way.
>
> -----Original Message-----
> From: adhesions@adhesions.org [mailto:adhesions@adhesions.org]On Behalf Of
>Karla N
> Sent: Thursday, May 09, 2002 11:13 AM
> To: Multiple recipients of list ADHESIONS
> Subject: Re: Questions on Pelvic CT Scans.
>
> Millie,
>
> CT scans do not show adhesions...with or without the contrast. But they
>will show bowel that is pulled out of place by adhesions...that is how they
>can say that you have adhesions from a ct...not by seeing the adhesion
>itself but by the positioning of your bowel. CT scans with or without
>contrast will also show obstructions....the contrast just highlights things
>more and makes it much easier to see. I suppose something could slip by if
>they didn't use contrast. You drank white contrast? The contrast I have
>drank with my CT's has always been clear...well either a Tang type liquid or
>most recently a kool-aid liquid. I don't remember any white contrast...but
>that could just be what my particular hospitals use.
>
> If there were some emergent problem..like an obstruction...the radiologist
>would be on the phone with your doctor immediately. Well, that is what
>happened in my case. If this test shows nothing I would question your
>doctor a little bit. Does the scan show anything that would indicate
>adhesions? Are your bowels in their normal position or are they pulled into
>another spot? I wouldn't go out looking for any more tests if the ct is
>"normal". Actually, if the ct shows the bowel is out of place because of
>adhesions I wouldn't get any more tests either. You don't need any more to
>tell you that you have adhesions. You have the pain. You have the bowel
>problems. That and your history say adhesions. Nothing short of surgery
>with a specialist is going to change anything or help you. Don't focus on
>the possibility of your having an obstruction. The stress of all of that
>will cause you a! lot more problems.
>
> Millie, do you remember when you first came on this list? Are you having
>any different or worse problems than you were then? At that time you were
>very worried about obstructions and the ng tube. Fortunately, you didn't
>have an obstruction and I think you were able to let go of the worries...you
>didn't focus on the possibilities of an obstruction for a LONG time. I
>would try and let go of the worry. It doesn't do you any good. No doctor
>is going to let you go with an obstruction. That would be lawsuit time.
>Yes you have lots of pain...that is normal with adhesions. Yes, you have
>bowel problems....that also is very normal with adhesions. Many of us go to
>the bathroom very little....that doesn't mean we all have
>obstructions...thank God. I have gone as long as ten days without having a
>bowel movement....yet I didn't have an obstruction. It was quite
>uncomfortable, but it eventually worked its ! way through. I think you have
>mentioned that you eat very little. That very well could be the reason
>that you are only passing a small amount of stool. I know that my habits
>change considerably based on what I eat and what I don't eat...including the
>amounts. I can go from being almost constipated to having considerable
>diarrhea in two minutes. That is all a part of having adhesions on my
>bowels.
>
> Please relax. Don't worry about being obstructed or having an ng tube
>until you are or you need the tube. You are causing yourself undo stress.
>This too could affect your bowels and your level of pain. If you start
>vomiting within a very short time of eating and you don't feel
>nauseated...then you should be a little concerned. But there's no sense
>worrying until you know that there is a definite problem.
>
> Love ya!
>
> Karla


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