Re: Help

From: cathy:- (anonymous@medispecialty.com)
Mon May 13 15:03:48 2002


Given that Person #1 can have insides that look like an explosion at the glue factory and yet not be in any kind of discomfort, and Person #2 can have relatively minor adhesions and be in agony, it would not be totally crazy to think that someone would only have the pains where the adhesions look "minor." It's all very much a matter of precisely what is connected to what in a microscopic sense. Yes, it's mostly that where there are a lot of adhesions is where you are going to find the adhesions that are giving you the problems, but maybe you are just one of the statistical outliers... I know that when it comes to endo adhesions it is pretty common that women with just a few adhesions are in a lot more poin than women with tons of them. (And no, nobody really has a clue why.)

I think that you really need to be listening to what the doctor is saying "between the lines" here. It's possible that the reason that he didn't see much over on the right is that he didn't really know what he was looking for. Or maybe he couldn't get the scope over there very well to look. I think laporotomy should be out of the question unless you are in an emergency condition, like a bowel obstruction that they can't clear. It's just going to make things worse. And if this surgeon doesn't believe that he is skilled enough to do this with a lap, then YOU sure don't want to be arguing with him, right???

I think that the idea of seeing other specialists in order to rule out other stuff is a wise choice. I think that you should also be searching for another adhesion specialist. After 11 surgeries, I think you should really think about trying something else, or at least trying somthing with another surgeon...

At Sun, 12 May 2002, Tami wrote: >
>Help.............
>I've been away for a long time but now I have returned. I am seeking
>advice and of course moral support. I just went thru my 11th surgery
>for adhesions. It was outpatient with the laproscope and my Dr did not
>remove any of the "ton" of adhesions that he saw. My pain is mostly
>right-sided with some on the left. Problem is the Dr saw the "ton" on
>the left and didn't see anything on the right. He states that my pain
>cannot radiate that far...and he states that it will require a laprotomy
>to remove the extensive adhesions on the left. Now I know from my pain
>and experience what I am feeling is adheisons on the right. But before
>he will do the Laprotomy he wants me to see a Gastro Dr and a Urologist
>to rule out irrital bowel, etc , of which I have no symtoms. Only pain
>meds I've been put on is Tylenol 3...which is doing nothing....just
>curious if anyone out there knows of a good surgeon in Las Vegas? or
>should I go ahead thru all the tests and more agonizing pain waiting to
>find out. My quality of life now sucks and I am so ready to just hang
>it all up....help

--
cathy :-)

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